Buckets were tipped. Brews were poured. But MND Action Month 2025 was more than just fundraising — it was a nationwide effort to raise awareness, start conversations, and support people living with motor neurone disease. Together, we helped make time count. From heartfelt Cuppa Tea parties to exhilarating Ice Bucket Challenges, people all over Aotearoa … Read more
Thanks to the support of Bunnings, our amazing volunteers, and communities across Aotearoa, MND Action Month sizzled its way to a $50,000 milestone — helping make time count for people living with motor neurone disease. On Saturday, 28 June, something special happened across Aotearoa. From Whangārei to Invercargill, 42 Bunnings stores opened their doors and … Read more
The latest edition of MND News has arrived — and it’s filled with stories of courage, connection, and community. Published during MND Action Month, the MND News Winter 2025 issue reflects the heart of what this time of year is all about. Across Aotearoa, people are tipping buckets of ice, pouring cups of tea, and … Read more
Today is Global MND/ALS Awareness Day — a date that falls on the solstice for a reason. It’s a turning point. It marks the shift — the return of longer days and a sense of renewal. We remember the lives lost to motor neurone disease (MND), stand with those living with it, and reflect on … Read more
The MND Insight Survey 2025 is the most comprehensive survey of the motor neurone disease (MND) community ever undertaken in New Zealand. Led by Dr Natalie Gauld, who was diagnosed with MND in 2022, this important research is supported by Motor Neurone Disease NZ and funded by the Health Research Council of New Zealand. To … Read more
A year as Motor Neurone Disease NZ’s Chief Executive Over the past year, Motor Neurone Disease NZ has continued its mission to support, advocate for, and push for progress in research and care. As we mark our 40th year, we reflect on the challenges, achievements, and resilience of our community. Chief Executive Mark Leggett shares … Read more
Improving care, support, and advocacy for people with MND Motor neurone disease (MND) is life-changing, affecting not only those diagnosed but also their whānau and support networks. The challenges can be overwhelming – from accessing healthcare and equipment to managing financial and emotional strain. Yet, despite its profound impact, there is still so much we … Read more
Building a clearer picture of motor neurone disease (MND) to improve care and drive change Research is essential for improving the lives of people with motor neurone disease (MND) and their families. It helps us understand what works, what doesn’t, and where change is needed to provide better care, services, and support. That’s why Motor … Read more
Join us for one of two MND Insight Survey webinars, where we’ll introduce the MND Insight Survey 2025, explain why it matters, and answer any questions you have. These sessions are not the survey itself but an opportunity to learn more before it launches. The MND Insight Survey 2025 is led by Dr Natalie Gauld, … Read more
At Motor Neurone Disease New Zealand (MND NZ), we are proud to reflect on a year marked by progress, resilience, and unwavering commitment to our community. The release of our 2023/24 Annual Impact Report offers a snapshot of the strides we’ve made, the challenges we’ve faced, and our vision for a brighter future. A New … Read more
We are delighted to share the Summer issue of MND News with you, a twice-yearly publication by Motor Neurone Disease New Zealand designed to inform and inspire. In this edition, read about Pamela Glading, who has been living with MND for 17 years, who shares how she continues to live a happy life but albeit … Read more
We love having Toni back in the office, and we’ve put a few questions to help get to know her better. What’s your favourite quality about yourself?Hmm that is a tough one! Probably that I am usually able to see/consider things from someone else’s perspective as well as my own. What are you most excited … Read more