Living with MND Articles

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Mike Brown at home beside his modified Mazda CX-9 — a vehicle that helped him stay mobile and independent after his MND diagnosis.
Community, Fundraising, Living with MND, Personal Stories

A journey of car modification, mobility, and mindset

Michael Brown—known to most as Mike or “Browno”—has always met life head-on. Sporty by nature and community-minded…

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Update on Lighthouse II trial
Living with MND, NZ MND Registry, Research

Lighthouse II trial ends, but research momentum continues

We want to share an important update with our community: the Lighthouse II clinical trial has been…

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David Seymour was a much-loved member of our Motor Neurone Disease NZ community.
Community, Living with MND

David Seymour: Advocate, mentor, and friend to our MND community

We’re deeply saddened by the recent death of David Seymour, a much-loved member of our Motor Neurone…

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Dr. Natalie Gauld, who was diagnosed with MND in 2022, is leading the MND Insight Survey
Advocacy, Living with MND, Research

Why the MND Insight Survey matters – Dr Natalie Gauld

Dr. Natalie Gauld, who was diagnosed with MND in 2022, is leading the MND Insight Survey, the…

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AAC Month
Education, Living with MND

Augmentative and Alternative Communication Awareness Month

October is International AAC Awareness Month, dedicated to raising awareness of augmentative and alternative communication (AAC), celebrate…

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Natalie Voice Banking
Community, Living with MND

Voice Banking

Voice banking is the recording of your natural voice while it is still natural and strong, for…

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Img 3296 1
Events, Fundraising, Living with MND

Bidois Whānau supporting MND Action Month

We first introduced you to Darren Bidois in February, when he shared his story in the lead…

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Am Show
Awareness, Living with MND

MND insight on the AM show

On Thursday we were privileged to have Dr Emma Scotter, head of the MND Lab at the…

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Screenshot 2023 04 05 151246
Awareness, Living with MND

Natalie Gauld: Adventuring after MND

Natalie was diagnosed with MND in November of 2022 and as is the case for everyone in…

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Mnd Website News Featherbed Tales Promo
Living with MND, MND NZ

Talking books & greeting card service available free to MND community just in time for Christmas

With Christmas just around the corner MND New Zealand is pleased to offer free access to the…

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Mnd Webinar 81122 Plain
Living with MND, Research

Join us online Nov 8 for inaugural MND NZ research update webinar

Join us for this inaugural webinar in the newly developed MND New Zealand Community Forum where leading…

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Cover Winter Newsletter 2022
Living with MND, Personal Stories, Research

MND New Zealand Newsletter – out now!

In this issue: Read online here

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