April 1, 2025
David Seymour: Advocate, mentor, and friend to our MND community
We’re deeply saddened by the recent death of David Seymour, a much-loved member of our Motor Neurone…
Living with MND Articles
1 - 12 of 94 posts
Community, Living with MND
Advocacy, Living with MND, Research
March 11, 2025
Why the MND Insight Survey matters – Dr Natalie Gauld
Dr. Natalie Gauld, who was diagnosed with MND in 2022, is leading the MND Insight Survey, the…
Education, Living with MND
October 14, 2024
Augmentative and Alternative Communication Awareness Month
October is International AAC Awareness Month, dedicated to raising awareness of augmentative and alternative communication (AAC), celebrate…
Community, Living with MND
September 3, 2024
Voice Banking
Voice banking is the recording of your natural voice while it is still natural and strong, for…
Events, Fundraising, Living with MND
June 13, 2024
Bidois Whānau supporting MND Action Month
We first introduced you to Darren Bidois in February, when he shared his story in the lead…
Awareness, Living with MND
February 23, 2024
MND insight on the AM show
On Thursday we were privileged to have Dr Emma Scotter, head of the MND Lab at the…
Awareness, Living with MND
March 23, 2023
Natalie Gauld: Adventuring after MND
Natalie was diagnosed with MND in November of 2022 and as is the case for everyone in…
Living with MND, MND NZ
November 14, 2022
Talking books & greeting card service available free to MND community just in time for Christmas
With Christmas just around the corner MND New Zealand is pleased to offer free access to the…
Living with MND, Research
October 12, 2022
Join us online Nov 8 for inaugural MND NZ research update webinar
Join us for this inaugural webinar in the newly developed MND New Zealand Community Forum where leading…
Living with MND, Personal Stories, Research
Living with MND, NZ MND Registry, Research
July 28, 2022
Lighthouse II – NZ’s first multi-site phase 3 clinical trial announced
By October of this year, a small group of New Zealanders living with Motor Neuron Disease will…
Living with MND
April 7, 2021
Skill-based swallowing training for patients with motor neurone disease
Summary of study provided by lead investigator Paige Thomas (PhD); Rose Centre for Stroke Recovery and Research,…