August 4, 2025
From diagnosis to determination: Wayne’s journey with MND
Wayne Richards is one of many New Zealanders living with motor neurone disease (MND) — and one…
Living with MND Articles
1 - 8 of 8 posts
Community, Living with MND
Community, Living with MND, Personal Stories
June 26, 2025
In memory of Helen: the rituals, the resilience, the love that stayed
For 30 years, it was part of Helen and Keith’s daily ritual — until motor neurone disease…
Community, Fundraising, Living with MND, Personal Stories
June 18, 2025
A path of passion, persistence, and practical know-how
Behind a set of double doors on a quiet West Auckland street sits a place that hums…
Community, Fundraising, Living with MND, Personal Stories
June 10, 2025
A journey of car modification, mobility, and mindset
Michael Brown—known to most as Mike or “Browno”—has always met life head-on. Sporty by nature and community-minded…
Living with MND, NZ MND Registry, Research
April 9, 2025
Lighthouse II trial ends, but research momentum continues
We want to share an important update with our community: the Lighthouse II clinical trial has been…
Community, Living with MND
April 1, 2025
David Seymour: Advocate, mentor, and friend to our MND community
We’re deeply saddened by the recent death of David Seymour, a much-loved member of our Motor Neurone…
Advocacy, Living with MND, Research
March 11, 2025
Why the MND Insight Survey matters – Dr Natalie Gauld
Dr. Natalie Gauld, who was diagnosed with MND in 2022, is leading the MND Insight Survey, the…
Education, Living with MND
October 14, 2024
Augmentative and Alternative Communication Awareness Month
October is International AAC Awareness Month, dedicated to raising awareness of augmentative and alternative communication (AAC), celebrate…
Community, Living with MND
September 3, 2024
Voice Banking
Voice banking is the recording of your natural voice while it is still natural and strong, for…
Events, Fundraising, Living with MND
June 13, 2024
Bidois Whānau supporting MND Action Month
We first introduced you to Darren Bidois in February, when he shared his story in the lead…
Awareness, Living with MND
February 23, 2024
MND insight on the AM show
On Thursday we were privileged to have Dr Emma Scotter, head of the MND Lab at the…
Awareness, Living with MND
March 23, 2023
Natalie Gauld: Adventuring after MND
Natalie was diagnosed with MND in November of 2022 and as is the case for everyone in…