September 16, 2026
The day my voice went quiet and my body defied me
By Tania Guillemot-Meehan Tania is an energetic, sociable, warm, and kind person who is always thinking of…
Living with MND Articles
1 - 3 of 3 posts
Awareness, Living with MND, Personal Stories
Community, Fundraising, Living with MND, Personal Stories
July 21, 2026
A lifetime of service: The courage and community behind Tony Rice’s MND story
“My dad is my hero,” says Annabelle Rice (pictured above) blinking back tears as she describes the…
Awareness, Fundraising, Living with MND, Personal Stories
July 9, 2026
One more road to ride: Al Rynn’s mission for MND
Adventure has always been at the heart of Al Rynn’s life. In 2024, the 60-year-old set out…
Awareness, Community, Living with MND, Personal Stories
June 19, 2026
Global MND/ALS Awareness Day: a time to remember, a time to take action
Sunday 21 June is Global MND/ALS Awareness Day. It’s a day that falls on the solstice for…
Education, Living with MND, Research
June 18, 2026
Brainstorming with Clare de Lore: MND
In the latest episode of Brainstorming with Clare de Lore (Newstalk ZB), made in partnership with the…
Awareness, Community, Living with MND
June 3, 2026
Cuppa Tea for MND: our July MND Connect Group, with an Action Month twist
Each month, we host an MND Connect Group at the MND NZ national office in Royal Oak…
Awareness, Fundraising, Living with MND, Personal Stories
June 2, 2026
Music, love and living ‘normally’: Chris Kemp’s life with MND
Behind a lime-green door, musicians Chris Kemp and Kendall Todd are choosing creativity, connection and purpose –…
Awareness, Community, Living with MND, Personal Stories
May 7, 2026
Seeds of connection: A pumpkin festival, the natural world and life with MND
Loren Hope (44) is a passionate advocate for te taiao* (the natural world) and the power of…
Awareness, Living with MND, Personal Stories
January 29, 2026
Blair Cox: 14-hour extreme triathlons to MND diagnosis
Commonwealth Games silver medalist Blair Cox has sage advice for competitors in the 2026 Master’s Games. “There…
Awareness, Community, Living with MND, Personal Stories
January 14, 2026
Still Time: Reflections on love, loss and life
Robyn Pryor didn’t set out to write a book. In 2022, when motor neurone disease (MND) forced…
Community, Living with MND
August 4, 2025
From diagnosis to determination: Wayne’s journey with MND
Wayne Richards is one of many New Zealanders living with motor neurone disease (MND) — and one…
Community, Living with MND, Personal Stories
June 26, 2025
In memory of Helen: the rituals, the resilience, the love that stayed
For 30 years, it was part of Helen and Keith’s daily ritual — until motor neurone disease…