Talking about death can be difficult, but planning for the end of life can bring comfort, clarity, and dignity. End-of-life doulas provide emotional, practical, and spiritual support to people with life-limiting illnesses and their families. They help with advance care planning, navigating the healthcare system, and ensuring a person’s wishes are understood and respected. In … Read more
In August, Dr Natalie Gauld, MND NZ’s Research Advisor travelled to Melbourne to attend the Australia and New Zealand MND Research Symposium. Here, she shares her insights and highlights from the conference. The Australia and New Zealand MND Research Symposium was a two-day jam-packed series of presentations by clever people working hard to find the … Read more
October is International AAC Awareness Month, dedicated to raising awareness of augmentative and alternative communication (AAC), celebrate people who use AAC to communicate, and share the latest tools and technologies in AAC. What is AAC? AAC encompasses a wide range of communication tools and systems that people use to express their thoughts, needs, wants, and … Read more
A new study has recently been published on the difference in levels of proteins associated with neurodegenerative disease
Independent Living Services’ Comfortable with Money workshops are back for 2024. Join the programme and take back control of your finances. First intake for 2024: Weekly on Wednesdays from March 13th, 6:30pm-8:00pm online. These FREE online workshops are designed specifically for people living with disability and their families, tāngata whaikaha Māori and tagata sa’ilimalo. Find … Read more
Beth Watson was strongly committed to supporting those impacted by MND, and was involved with MND NZ for many years as president, part of the council, and as life member. Recognising the importance of helping young children in understanding what may lie ahead when their loved ones are diagnosed with MND, Beth set out to … Read more
📌 Free online workshop on Assistive Technology The Federation of Disability Information Centres and Complex Care Group will be hosting an online workshop on assistive technology on Wednesday 29th November 12 noon till 1.30pm via Zoom, with a presentation first, followed by discussion time. This workshop will be facilitated by Emma Brockie of Living Well … Read more
The future of MND treatment in New Zealand: Best practice recommendations and beyond Wednesday 6 September, 20237pm – 8pm Comprehensive, multidisciplinary care is the current gold standard for treating MND. Motor Neurone Disease NZ recently facilitated the production of best practice guidelines for the care of people living with motor neurone disease. Developed over … Read more