April 24, 2024
Auckland scientists celebrate MND breakthrough: Newshub interview with Dr Scotter
In the final instalment of Newshub’s three-part series on motor neurone disease, journalist Amanda Gillies spoke with…
Clinical News Articles
Clinical News, Research
Advocacy, Clinical News
April 4, 2024
Motor Neurone Disease: investigational drug granted accelerated approval
Trapped inside a body that no longer works, unable to speak, move or, eventually, breathe. People with…
Advocacy, Clinical News
November 3, 2023
Pharmac committee recommends continued funding of food thickeners for people with MND
Today, Pharmac has published the minutes of the August PTAC (Pharmacology and Therapeutics Advisory Committee) meeting, where…
Advocacy, Clinical News
October 31, 2023
Medsafe confirms error with changes to Riluzole
Late last week we were advised Medsafe had updated the prescribing regime for Riluzole, a drug that…
Advocacy, Clinical News
October 27, 2023
Update on recent Riluzole prescribing changes
Motor Neurone Disease NZ has been made aware of a change Medsafe has recently made to the…
Advocacy, Clinical News
February 22, 2023
Pharmac proposal to phase out funding of food thickeners
MND NZ is extremely disappointed with Pharmac’s proposal to phase out funding of food thickeners for…
Clinical News, Research
November 8, 2022
Best practice guidelines published to improve MND care in NZ
A new set of clinical guidelines for the management and care of individuals with MND has been…
Advocacy, Clinical News
June 18, 2020
Motor Neurone Disease Clinical Working Group aims to improve lives through standardised care
Last September, we held the first-ever MND Hui at Parliament. The hui offered the chance for people…