As part of MND Action Month, Motor Neurone Disease NZ is teaming up with Bunnings for a NATIONWIDE sausage sizzle on Saturday, 15th June, from 9am to 3pm and we need you! We’re looking for enthusiastic volunteers to assist at 41 Bunnings locations across NZ. Just a couple hours of your time can help make … Read more
It’s not all hot tea and ice buckets this June! Earlier today Taranaki-born Jon Beardmore was interviewed on One Breakfast about his postman adventure in memory of his dad, who passed away from motor neurone disease 18 months ago. In what he calls “the Galapagos Postman Challenge”, Jon has taken 50 letters from an ancient … Read more
Sam Stuchbury Tomorrow’s a new day. There’s light at the end of the tunnel. You can’t stop the waves of life, but you can learn how to surf. Clichés often contain a kernel of truth, which is probably why they gain traction in the first place. And over the past 18 months clichés have made … Read more
MND Action Month is back for 2024! Gather your workmates, your whānau, and your friends and let’s do whatever we can to make time count for people with motor neurone disease this June. When raising awareness about tough diseases, like MND, there’s no denying that conversation and connection go a long way. Recognizing this power … Read more
Darren Bidois – a former New Zealand indoor cricket rep who was diagnosed with MND on his 58th birthday – recently candidly shared the everyday realities of living with MND with Duncan Garner as part of the ‘Editor in Chief’ podcast. “His journey is not just a battle with physical decline but a testament to … Read more
On Thursday we were privileged to have Dr Emma Scotter, head of the MND Lab at the University of Auckland, and Dr Natalie Gauld, ONZM, Research Advisor and Best Practice Advocate at MND NZ, on the AM Show sofa on Three discussing motor neurone disease and this weekend’s Walk to Defeat MND. If you missed … Read more
Earlier this month, Ruth Mylchreest – Waikato local, athlete and Te Whatu Ora- Waikato neurology clinical nurse specialist took on an incredible challenge to raise awareness and funding for people affected by MND and Huntington’s disease. The challenge saw Ruth climb Kakepuku Mountain 10 times – a total distance of around 75km – on a … Read more
Taupō retiree and former nurse Sally Sims, who was diagnosed with MND in 2022, is hosting a charity auction with residents at Summerset Taupō to raise money for MND research. 👉 1pm at Summerset by the Lake, Taupō 👉 Saturday 26 August 👉 Everyone welcome Local community members and businesses have donated items ranging from … Read more
Motor Neurone Disease NZ is the official charity partner for the NZ Masters Games, the largest and longest-running Masters multi-sport festival in New Zealand. The 35th annual Games will be hosted in Dunedin from 3-12 February 2024. Motor neurone disease (MND) is a fatal, rapidly progressing neurological disease that leaves people locked in a failing … Read more
MND NZ Board member Estelle and her husband Geoff have run an annual charity bridge tournament for many years, helping to raise money and awareness for a wide range of causes dearest to the Royle Epsom Bridge Club members. “Because of the tightknit nature of the bridge playing community, bridge tournaments are an amazing way … Read more
TV shows can be a powerful tool, helping to illustrate how various diseases and conditions impact on a person and their loved ones when woven into a storyline. When done well, the storyline can improve the public’s understanding and awareness, and in some cases may even ignite interest from researchers and medical professionals, as has … Read more
Wow, what an incredible June YOU have helped create! Your support means the world to us. Here at Motor Neurone Disease NZ, we see firsthand the cruel blows and unfairness of an MND diagnosis on both the individual and those that love them. We also see the hope and strength you offer through Motor Neurone … Read more