MND Action Month is back for 2024! Gather your workmates, your whānau, and your friends and let’s do whatever we can to make time count for people with motor neurone disease this June. When raising awareness about tough diseases, like MND, there’s no denying that conversation and connection go a long way. Recognizing this power … Read more
Darren Bidois – a former New Zealand indoor cricket rep who was diagnosed with MND on his 58th birthday – recently candidly shared the everyday realities of living with MND with Duncan Garner as part of the ‘Editor in Chief’ podcast. “His journey is not just a battle with physical decline but a testament to … Read more
On Thursday we were privileged to have Dr Emma Scotter, head of the MND Lab at the University of Auckland, and Dr Natalie Gauld, ONZM, Research Advisor and Best Practice Advocate at MND NZ, on the AM Show sofa on Three discussing motor neurone disease and this weekend’s Walk to Defeat MND. If you missed … Read more
Earlier this month, Ruth Mylchreest – Waikato local, athlete and Te Whatu Ora- Waikato neurology clinical nurse specialist took on an incredible challenge to raise awareness and funding for people affected by MND and Huntington’s disease. The challenge saw Ruth climb Kakepuku Mountain 10 times – a total distance of around 75km – on a … Read more
Taupō retiree and former nurse Sally Sims, who was diagnosed with MND in 2022, is hosting a charity auction with residents at Summerset Taupō to raise money for MND research. 👉 1pm at Summerset by the Lake, Taupō 👉 Saturday 26 August 👉 Everyone welcome Local community members and businesses have donated items ranging from … Read more
Motor Neurone Disease NZ is the official charity partner for the NZ Masters Games, the largest and longest-running Masters multi-sport festival in New Zealand. The 35th annual Games will be hosted in Dunedin from 3-12 February 2024. Motor neurone disease (MND) is a fatal, rapidly progressing neurological disease that leaves people locked in a failing … Read more
MND NZ Board member Estelle and her husband Geoff have run an annual charity bridge tournament for many years, helping to raise money and awareness for a wide range of causes dearest to the Royle Epsom Bridge Club members. “Because of the tightknit nature of the bridge playing community, bridge tournaments are an amazing way … Read more
TV shows can be a powerful tool, helping to illustrate how various diseases and conditions impact on a person and their loved ones when woven into a storyline. When done well, the storyline can improve the public’s understanding and awareness, and in some cases may even ignite interest from researchers and medical professionals, as has … Read more
Wow, what an incredible June YOU have helped create! Your support means the world to us. Here at Motor Neurone Disease NZ, we see firsthand the cruel blows and unfairness of an MND diagnosis on both the individual and those that love them. We also see the hope and strength you offer through Motor Neurone … Read more
Join us Sunday 23 July on Waiheke Island, for a G&T for MND hosted by Waiheke Distilling Co! The team at this iconic boutique distillery have created a gorgeous blue cocktail to capture the essence of the MND cornflower blue logo and story as part of #MNDActionMonth. The unique cocktail is anchored on Waiheke Distilling … Read more
Walk 2 D’Feet MND is a volunteer organised and facilitated community event created to raise awareness and vital funds for MND. With a global pandemic overshadowing everything the future of these events being in person was uncertain at best. That is until we were joined by incredibly talented volunteers from Invercargill, the Hawke’s Bay, Palmerston … Read more
In 2022 Allan Bullot completed his now legendary Lord of the Rings inspired Witch King half marathon for Motor Neurone Disease NZ. Along the way he amazed beach goers while walking over 21 kms in a 3 metre tall 15 kilo Witch King of Angmar costume; all while raising over $10,000 for support, research and … Read more