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Shauntelle (l) And Silvia (r) Landscape
Awareness, Community, Fundraising

Silvia Hodel turns jewellery hobby into fundraiser to honour sister

In September 2016, Shauntelle Schreuder (L), a 40-year-old mother-of-two, was diagnosed with motor neurone disease (MND). Shauntelle’s…

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Blair Cox
Awareness, Living with MND, Personal Stories

Blair Cox: 14-hour extreme triathlons to MND diagnosis

Commonwealth Games silver medalist Blair Cox has sage advice for competitors in the 2026 Master’s Games. “There…

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Robyn And Husband sitting side by side laughing
Awareness, Community, Living with MND, Personal Stories

Still Time: Reflections on love, loss and life

Robyn Pryor didn’t set out to write a book. In 2022, when motor neurone disease (MND) forced…

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Teglutik Bottle Syringe Modification Asteri Logo 20250923
Advocacy, Awareness, Treatments

Government urged to fund liquid riluzole for people with MND

Motor Neurone Disease NZ is calling for the Government to urgently introduce and fund liquid riluzole for…

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Helen Casey Macduff At Art Exhibition 4
Awareness, Community, Fundraising

When art mirrors life: the powerful layers of creativity

Helen Casey-MacDuff has a lifelong-artist’s view of the world and as an art educator she encourages others…

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Jackie (R) With Her Dad Craig And Sister Hannah
Awareness, Community, Fundraising

Jackie’s response: a 24-hour gym challenge

Photo: Jackie Keenan (R) rides with her dad, Craig, and sister Hannah When Jackie Keenan’s dad was…

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New Zealand Masters Games 2026
Awareness, Community, Events

MND NZ Reappointed as Official Charity Partner for 2026 NZ Masters Games

We’re proud to share that Motor Neurone Disease NZ has once again been named the official charity partner…

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Professor Hanneke Hulst will join the Centre for Brain Research as Director in December 2025
Awareness, Clinical News, Research

New Director announced for the Centre for Brain Research

Motor Neurone Disease NZ welcomes the appointment of Professor Hanneke Hulst as the next Director of the…

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Hurricanes Fundraiser Banner
Awareness, Community, Fundraising

From the field to the heart — Hurricanes Alumni stand for MND

The Hurricanes Alumni Foundation Trust recently came together for a special fundraising dinner — a night of…

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Edm Header Bunnings Beanies 2406
Awareness, Community, Fundraising

Shop, Sizzle & Support with Bunnings 28 June

Motor neurone disease (MND) is a devastating, incurable illness that slowly robs people of their ability to…

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Cuppa Tea Event Banner Artwork
Awareness, Community, Events

You’re invited: Cuppa Tea for MND at Yarnton House

Join us Wednesday 2 July, 12.30pm to 2pm, for a special Cuppa Tea for MND at the…

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Blue Cornflower Blog
Awareness, Community, MND NZ

A mother remembered, a movement honoured — Global MND Awareness Day

Today is Global MND/ALS Awareness Day — a date that falls on the solstice for a reason….

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