February 23, 2026
MND NZ meets with Minister of Health to advocate for change
MND NZ CE Mark Leggett and MND NZ Research Advisor Dr Natalie Gauld met with the Minister…
Awareness Articles
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Advocacy, Awareness, Community, Research
Awareness, Community, Fundraising
February 10, 2026
Silvia Hodel turns jewellery hobby into fundraiser to honour sister
In September 2016, Shauntelle Schreuder (L), a 40-year-old mother-of-two, was diagnosed with motor neurone disease (MND). Shauntelle’s…
Awareness, Living with MND, Personal Stories
January 29, 2026
Blair Cox: 14-hour extreme triathlons to MND diagnosis
Commonwealth Games silver medalist Blair Cox has sage advice for competitors in the 2026 Master’s Games. “There…
Awareness, Community, Living with MND, Personal Stories
January 14, 2026
Still Time: Reflections on love, loss and life
Robyn Pryor didn’t set out to write a book. In 2022, when motor neurone disease (MND) forced…
Advocacy, Awareness, Treatments
December 16, 2025
Government urged to fund liquid riluzole for people with MND
Motor Neurone Disease NZ is calling for the Government to urgently introduce and fund liquid riluzole for…
Awareness, Community, Fundraising
December 10, 2025
When art mirrors life: the powerful layers of creativity
Helen Casey-MacDuff has a lifelong-artist’s view of the world and as an art educator she encourages others…
Awareness, Community, Fundraising
December 9, 2025
Jackie’s response: a 24-hour gym challenge
Photo: Jackie Keenan (R) rides with her dad, Craig, and sister Hannah When Jackie Keenan’s dad was…
Awareness, Community, Events
September 15, 2025
MND NZ Reappointed as Official Charity Partner for 2026 NZ Masters Games
We’re proud to share that Motor Neurone Disease NZ has once again been named the official charity partner for the 2026 New Zealand Masters Games, taking place in Ōtepoti Dunedin from 31…
Awareness, Clinical News, Research
September 1, 2025
New Director announced for the Centre for Brain Research
Motor Neurone Disease NZ welcomes the appointment of Professor Hanneke Hulst as the next Director of the Centre for Brain Research (CBR) at Waipapa Taumata Rau, University of Auckland. An…
Awareness, Community, Fundraising
July 14, 2025
From the field to the heart — Hurricanes Alumni stand for MND
The Hurricanes Alumni Foundation Trust recently came together for a special fundraising dinner — a night of connection, reflection, and heartfelt giving. Held on 31 May, the event brought together…
Awareness, Community, Fundraising
June 27, 2025
Shop, Sizzle & Support with Bunnings 28 June
Motor neurone disease (MND) is a devastating, incurable illness that slowly robs people of their ability to…
Awareness, Community, Events
June 24, 2025
You’re invited: Cuppa Tea for MND at Yarnton House
Join us Wednesday 2 July, 12.30pm to 2pm, for a special Cuppa Tea for MND at the…