Receiving a motor neurone disease (MND) diagnosis can be a challenging and emotional experience for families. At just 13 years old, Mia Peters captured her experience with MND through a deeply moving piece of writing. Her mother shared, “With my daughter’s permission, I wanted to share a story Mia wrote last year for the … Read more
As part of our action Month, the Crowe family held a Cuppa Tea and an Ice Bucket challenge in memory of their husband and dad Ian, who passed away in December last year. The Lower Hutt family hosted 60 friends and family last Sunday, and included our own Moira Young, Support Advisor for the lower … Read more
Today is Global MND/ALS Awareness Day 💙🌏 Every year we acknowledge Global MND Day on 21 June, as it is the solstice – a turning point. It symbolises our collective hope that this year we will have a turning point in the search for a future free from MND. Today we are thinking of the … Read more
Join us on June 21st at 1 PM at Go Media Stadium for a special event supporting MND NZ! Inspired by her dad, Kristy is raising awareness for motor neurone disease with the help of the One NZ Warriors. Get ice bucketed by a Warrior, meet the players, and bid on exclusive merch. Plus, Te … Read more
We are absolutely delighted to share that Bunnings and our wonderful volunteers raised over $30,000 on Saturday. It has been such a privilege to work with the Bunnings staff and stores, and to meet so many people and hear so many stories of MND. Thank you for all your hard work to bring this to … Read more
As part of MND Action Month, Motor Neurone Disease NZ is teaming up with Bunnings for a NATIONWIDE sausage sizzle on Saturday, 15th June, from 9am to 3pm and we need you! We’re looking for enthusiastic volunteers to assist at 41 Bunnings locations across NZ. Just a couple hours of your time can help make … Read more
It’s not all hot tea and ice buckets this June! Earlier today Taranaki-born Jon Beardmore was interviewed on One Breakfast about his postman adventure in memory of his dad, who passed away from motor neurone disease 18 months ago. In what he calls “the Galapagos Postman Challenge”, Jon has taken 50 letters from an ancient … Read more
Sam Stuchbury Tomorrow’s a new day. There’s light at the end of the tunnel. You can’t stop the waves of life, but you can learn how to surf. Clichés often contain a kernel of truth, which is probably why they gain traction in the first place. And over the past 18 months clichés have made … Read more
MND Action Month is back for 2024! Gather your workmates, your whānau, and your friends and let’s do whatever we can to make time count for people with motor neurone disease this June. When raising awareness about tough diseases, like MND, there’s no denying that conversation and connection go a long way. Recognizing this power … Read more
Darren Bidois – a former New Zealand indoor cricket rep who was diagnosed with MND on his 58th birthday – recently candidly shared the everyday realities of living with MND with Duncan Garner as part of the ‘Editor in Chief’ podcast. “His journey is not just a battle with physical decline but a testament to … Read more
On Thursday we were privileged to have Dr Emma Scotter, head of the MND Lab at the University of Auckland, and Dr Natalie Gauld, ONZM, Research Advisor and Best Practice Advocate at MND NZ, on the AM Show sofa on Three discussing motor neurone disease and this weekend’s Walk to Defeat MND. If you missed … Read more
Earlier this month, Ruth Mylchreest – Waikato local, athlete and Te Whatu Ora- Waikato neurology clinical nurse specialist took on an incredible challenge to raise awareness and funding for people affected by MND and Huntington’s disease. The challenge saw Ruth climb Kakepuku Mountain 10 times – a total distance of around 75km – on a … Read more