March 11, 2025
MND research: answering your key questions and driving change
Building a clearer picture of motor neurone disease (MND) to improve care and drive change Research is…
Advocacy Articles
1 - 12 of 71 posts
Advocacy, MND NZ, Research
Advocacy, Living with MND, Research
March 11, 2025
Why the MND Insight Survey matters – Dr Natalie Gauld
Dr. Natalie Gauld, who was diagnosed with MND in 2022, is leading the MND Insight Survey, the…
Advocacy, MND NZ, Research
March 5, 2025
Join the MND Insight Survey webinars
Join us for one of two MND Insight Survey webinars, where we’ll introduce the MND Insight Survey…
Advocacy, MND NZ, Support
July 8, 2024
We’re growing our support with your help
We’re growing our support! 💙 Motor Neurone Disease NZ was built on the ethos of helping people…
Advocacy, Research
June 3, 2024
Dr Emma Scotter: MNZM for services to MND
We are thrilled Dr Emma Scotter has been appointed a Member of the New Zealand Order of…
Advocacy, Clinical News
April 4, 2024
Motor Neurone Disease: investigational drug granted accelerated approval
Trapped inside a body that no longer works, unable to speak, move or, eventually, breathe. People with…
Advocacy, MND NZ
December 7, 2023
Dr Natalie Gauld appointed as Research Advisor and Best Practice Advocate
We are very pleased to welcome Dr Natalie Gauld to Motor Neurone Disease NZ as Research Advisor…
Advocacy, Clinical News
November 3, 2023
Pharmac committee recommends continued funding of food thickeners for people with MND
Today, Pharmac has published the minutes of the August PTAC (Pharmacology and Therapeutics Advisory Committee) meeting, where…
Advocacy, Clinical News
October 31, 2023
Medsafe confirms error with changes to Riluzole
Late last week we were advised Medsafe had updated the prescribing regime for Riluzole, a drug that…
Advocacy, Clinical News
October 27, 2023
Update on recent Riluzole prescribing changes
Motor Neurone Disease NZ has been made aware of a change Medsafe has recently made to the…
Advocacy, Clinical News
February 22, 2023
Pharmac proposal to phase out funding of food thickeners
MND NZ is extremely disappointed with Pharmac’s proposal to phase out funding of food thickeners for…
Advocacy, Clinical News
June 18, 2020
Motor Neurone Disease Clinical Working Group aims to improve lives through standardised care
Last September, we held the first-ever MND Hui at Parliament. The hui offered the chance for people…