Support and information
Motor Neurone Disease NZ is a charity built on the ethos of helping people affected by MND – it’s the cornerstone of all that we do. If you or a loved one has MND, we’re here for you.
We provide a range of services across Aotearoa New Zealand to support people with MND, their carers, family, friends and health professionals. These services are provided at no direct cost to the person with MND, and made possible through donations and fundraising.
How we can help you
Support service
Our team of compassionate regional MND support advisors can provide personalised support and advocacy to you, your whānau and those involved in your care.
Support fund
The MND Support Fund provides additional support to people with MND, their immediate families, whānau, and carers to maximise their quality of life.
Information services
We have a range of information and education resources and services available for all those seeking information.
Support for carers
When someone is given a diagnosis of motor neurone disease it impacts on all those around them, particularly their family and friends. Supporting someone with MND can be physically, emotionally and psychologically difficult.
Stay connected
Support groups
Support groups are organised and hosted by wonderful volunteers, and are attended by support advisors when they are able to.
Online communities
Join the Kiwi MND/ALS Facebook group, or another online community and connect with others affected.
Support for rangatahi
Children quickly perceive stressful situations. Being included, opportunities to talk and ask questions, and your continuing love will help them to cope.
Living with MND
The progression of MND is unpredictable, and varies significantly from person to person. Although there is no cure for MND yet, research has shown there are some things you can do to live better for longer with MND.
Read more about the interventions that research has shown to help people live better for longer with MND.
Other information
Treatment
Riluzole is the only drug funded for the treatment of MND in New Zealand. Most newly diagnosed individuals are eligible.
People involved in your care
With the varied symptoms of MND, it can help to find out about the types of care available and who provides them.
Planning ahead
Having time to think things through and knowing that your wishes and decisions have been recorded gives many people peace of mind.
Get involved
Motor Neurone Disease NZ is a charity dedicated to making time count for people affected by MND in New Zealand. We do this by offering personal support; advocacy; education; and supporting research.
We receive very little government funding to deliver services, relying on the generosity of trusts, grants, businesses and the general public to provide support and contribute to research.
Last updated:
1 November 2024