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Call for Poetry Submissions: Paul Kelly

…caring for someone who is, or working as a medical professional in the MND community. The goal is to capture the diverse emotions, stories, and insights from the MD experience,…

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MND insight on the AM show

…at MND NZ, on the AM Show sofa on Three discussing motor neurone disease and this weekend’s Walk to Defeat MND. If you missed it, watch the clip here https://m.youtube.com/watch?v=z3CWwBGq8mo…

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Your stories

…All he can move is his head. My husband is one of the bravest people I know. He always has a smile, he never complains and is trying so hard….

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Occupation and motor neurone disease: A New Zealand Case-control study

…Occupation and Motor Neurone Disease: a New Zealand case-control study – has been published in Occupational & Environmental Medicine. Please click on the link below to access the paper, https://oem.bmj.com/content/76/5/309.full?ijkey=zVCJaVI8H68DFRy&keytype=ref…

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Walk to Defeat MND is back this February!

…this free of charge and without any government funding. Community walks are volunteer organised and take on the atmosphere of the communities they are held in. Some are big, vibrant…

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First New Zealander on Tofersen: Newshub interview with Jimmy

…MND. Read more and watch the news segment, here: www.newshub.co.nz/home/new-zealand/2024/04/motor-neurone-disease-game-changer-treatment-soon-available-in-new-zealand In people of European descent, SOD1 gene mutations cause about 15-30% of MND cases with a family history (familial) and…

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Call for data collection: Newshub interview with Paul

…segment, here: www.newshub.co.nz/home/new-zealand/2024/04/christchurch-man-petitions-for-motor-neurone-disease-to-be-notifiable-after-wife-s-diagnosis. MND NZ believes the collection of comprehensive data is vital for improving the understanding of MND, including possible causes and disease progression, and connecting people with MND…

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You’re invited: Help make time count this MND Action Month

…to make time count for those affected today, as well as supporting research for a future free from MND.   Visit www.mndactionmonth.org.nz for all the details and to sign up….

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SEEKING VOLUNTEER ORGANISERS

…publish the dates and locations of community events as they are confirmed. If you’re not already on our mailing list, sign up below for updates. For further information visit: www.mndwalk.org.nz…

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June 15: National MND sausage sizzle with Bunnings

…sold helps make a difference. For more info about MND Action Month, visit www.mndactionmonth.org.nz. Let’s come together to support those living with MND. See you at Bunnings on June 15th!…

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Important update about COVID-19

…are vulnerable when it comes to flu and viruses, there are measures you can take to protect yourself. The Ministry of Health (MOH) has issued guidelines on how to keep…

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Ministry of Social Development makes temporary changes as part of COVID-19 response

…to do anything – they’ll continue getting paid. More information The best place to go for the latest information on ways MSD can help is their website. Go to www.workandincome.govt.nz….

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