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Planning ahead

…New Zealand law with permission from NSW Trustee & Guardian (www.planningaheadtools.com) Advance care planning is the process of thinking about, talking about and planning for future health care and end-of-life…

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Transport and getting about

…provide outdoor mobility. It also provides grants to people with communication-related disabilities for the purchase of equipment to facilitate communication. Click here for more information. Freedom Mobility Freedom Mobility provides…

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Australasian MND Symposium – live blog (Day 1)

…much cheaper ($50/sample) I’m afraid the stuff about the 3D model got a bit complicated for this reporter’s understanding!   4:15pm John Lee – The pathogenic role of complement C5a…

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2018 Research Update: Clinical Management

…with MND in New Zealand. It includes advice about communicating about sensitive subjects, new respiratory research, and developments in assistive communication technology. 1. Clinical Management Golden Rules Equipment Communication Comfort…

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Team MND at Auckland Marathon – November 2024

…individually or get a team together.   Set up your fundraising page or team page from this link:  https://aucklandmarathon2024.grassrootz.com/mnd-new-zealand/team-mnd  If you have any questions, you can get in touch with Jodi on jodiclouston@gmail.com

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Ride for Ronnie 2024

…by coming together in order to raise funds to support other sufferers and continue the search for a cure.  Richard, Jane, and team Ride for Ronnie are taking part in…

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MND NZ announced as 2024 NZ Masters Games’ charity partner

…asked to support the charity by making a voluntary $5 donation when registering for the 2024 New Zealand Masters Games, or by donating here. To find out more, visit: www.nzmg.com

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Free online workshop on Assistive Technology

…Centre. Emma is one of only four registered Assistive Technology Mentors in New Zealand. Places are limited so you need to register as soon as possible. Sign up here https://www.surveymonkey.com/r/WS6AT…

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MND diagnosis on Coronation Street

…with the Coronation Street team to ensure the portrayal is as accurate as possible, within the boundaries of a television drama. Read more about the storyline here: https://www.itv.com/coronationstreet/articles/paul-diagnosed-with-motor-neurone-disease “Coro” has…

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Hard road made easier thanks to love and support

…caring and supportive, it’s awesome. We know we have to play the hand that we’re dealt in life, but without these people it would be so, so much harder.” https://www.nzmg.com/hard-road-made-easier-thanks-to-love-and-support/…

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Thousands Support Sunday’s Walk 2 D’Feet MND

…are still coming in, a tally will be completed next month. MND New Zealand Fundraising Manager Kate Dalders says, “These events are not just about the incredible amount of funds…

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Q&A with expert Peter Crouch on recent copper-ATSM trial results

…Crouch to help you get the most accurate information about the latest results and how this will affect the MND community. What is copper-ATSM? It is a compound comprised of…

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