July 28, 2022
Lighthouse II – NZ’s first multi-site phase 3 clinical trial announced
By October of this year, a small group of New Zealanders living with Motor Neuron Disease will…
Living with MND Articles
1 - 12 of 26 posts
Living with MND, NZ MND Registry, Research
Living with MND
April 7, 2021
Skill-based swallowing training for patients with motor neurone disease
Summary of study provided by lead investigator Paige Thomas (PhD); Rose Centre for Stroke Recovery and Research,…
Living with MND
January 20, 2020
Changes to Funded Family Care
Yesterday the Government announced changes to Funded Family Care, designed to make things more equitable. Here’s a…
Living with MND
August 29, 2019
Just launched- The Fulton Hogan Support Fund
Living with MND is incredibly challenging, and providing practical support to people living with MND is very…
Living with MND, Personal Stories
August 22, 2019
Living with MND – Samarra’s story
West Coast woman Samarra Wright is one of three people in her family currently living with MND…
Living with MND, MND NZ
July 17, 2019
Proposed changes to the prescribing of Riluzole – MoH Consultation open until 9th August
Following our 3rd April article, ‘Prescribing of Rilutek (Riluzole) – What you need to know’, we would…
Living with MND
May 7, 2019
Q&A with Paul Manning from Helius Theraputics
Paul Manning knows first-hand the effects of opiate-based pain killers. Having experienced chronic pain for over 15 years,…
Living with MND
April 9, 2019
Family Funded Care Update
A recent report surveying over 900 affected families and care organisations about the carer laws has been…
Living with MND
October 2, 2018
Getting into nature with MND
Holidays can be an essential way to recharge your batteries, particularly in times of stress or illness….
Living with MND, Personal Stories
September 19, 2018
Solo travel: A personal story
This report comes from an experienced traveller who has been affected by MND for a number of…