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Taranaki Cathedral Breakfast
Community, Fundraising

June 11: Taranaki Cathedral’s Good Café supporting MND

THE GOOD CAFE (formerly the Community Cafe) is a vibrant hub of hospitality and delicious breakfast every Tuesday morning, raising tens of thousands of dollars for various charitable projects. As…

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Screenshot
Awareness, Personal Stories

Finding laughter and joy in the darkest places

Sam Stuchbury Tomorrow’s a new day. There’s light at the end of the tunnel. You can’t stop the waves of life, but you can learn how to surf. Clichés often…

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Mnd Action Animated Gif V1 970x250
Awareness, Community, Fundraising

You’re invited: Help make time count this MND Action Month

MND Action Month is back for 2024! Gather your workmates, your whānau, and your friends and let’s do whatever we can to make time count for people with motor neurone…

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Family photo - Hayley and Kirsten
Community, Personal Stories

Mum & MND

Pictured from left: Kirsten, Beverley, John and Hayley Today, as we are celebrating mothers, we are thinking of those who lost their mums to MND, and those mothers walking the…

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Gerald Patterson preparing for Bike USA
Community, Fundraising

Trio riding 5,150kms for motor neurone disease

Photo caption: Rider Gerald Patterson during his training for the epic challenge ahead On Saturday 18 May three New Zealand riders will embark on the cycling trip of a lifetime,…

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MND Support Group in Taranaki
Community, Support

New MND support group in Taranaki

Photo caption: Jen (left) & Megan (right) are bringing together whānau impacted by MND After losing her mum to motor neurone disease, Jen Smart saw a need to support grieving…

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Neuroscientist Dr Emma Scotter
Clinical News, Research

Auckland scientists celebrate MND breakthrough: Newshub interview with Dr Scotter

In the final instalment of Newshub’s three-part series on motor neurone disease, journalist Amanda Gillies spoke with Dr Emma Scotter, head of the Motor Neuron Disease Research Lab at the…

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Make MND a notifiable disease Barton interview
Personal Stories, Research

Call for data collection: Newshub interview with Paul

Ally Barton, once an active hiker and gym goer, was diagnosed with MND at just 34, one of the youngest with the condition in New Zealand. Newshub recently interviewed husband…

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Mnd Nz Web Banner
Personal Stories, Treatments

First New Zealander on Tofersen: Newshub interview with Jimmy

This week TV3’s Newshub shared a piece on Jimmy King, the first New Zealander with MND to…

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Two participants in Walk to Defeat MND
Community, Events

Walk to Defeat MND: A Step Forward

This year’s Walk to Defeat MND was a resounding success, bringing together communities from Wellington, Christchurch, and Auckland to raise much needed awareness, not to mention an astounding $123,390 for…

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Biogen Big
Advocacy, Clinical News

Motor Neurone Disease: investigational drug granted accelerated approval

Trapped inside a body that no longer works, unable to speak, move or, eventually, breathe. People with…

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Beth Watson
Community

Beth Watson and MND NZ

There are many people who have contributed to MND NZ over its past decades, but possibly none…

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