This week TV3’s Newshub shared a piece on Jimmy King, the first New Zealander with MND to access Tofersen. Tofersen is an investigational drug developed by Biogen to treat SOD1-type…
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Motor Neurone Disease: investigational drug granted accelerated approval
…with no treatment or cure available, it is a terrifying fate. Tofersen (brand name Qalsody) is an investigational drug developed by the company Biogen to treat MND caused by a…
Turning science into hope: MND research update
…we are actively working on gene-targeted treatments. Our research focuses on small DNA-like molecules, similar to the MND drug Tofersen, that are designed to ‘switch off’ harmful gene errors. By…
“The Australia and New Zealand MND Research symposium gave me hope”
…cure. While a cure is expected to be decades away, more effective treatments feel a lot closer. Tofersen for SOD-1 gene mutation is a big step forward. There is an…