This week TV3’s Newshub shared a piece on Jimmy King, the first New Zealander with MND to access Tofersen. Tofersen is an investigational drug developed by Biogen to treat SOD1-type…
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Motor Neurone Disease: investigational drug granted accelerated approval
…with no treatment or cure available, it is a terrifying fate. Tofersen (brand name Qalsody) is an investigational drug developed by the company Biogen to treat MND caused by a…
Turning science into hope: MND research update
…we are actively working on gene-targeted treatments. Our research focuses on small DNA-like molecules, similar to the MND drug Tofersen, that are designed to ‘switch off’ harmful gene errors. By…
Brainstorming with Clare de Lore: MND
…ALS subtype of MND. Together, they cover: The role of genetics and genetic testing in MND Why MND looks different for everyone Current treatments, including riluzole and tofersen Ongoing research…
“The Australia and New Zealand MND Research symposium gave me hope”
…cure. While a cure is expected to be decades away, more effective treatments feel a lot closer. Tofersen for SOD-1 gene mutation is a big step forward. There is an…
Motor neurone disease webinar recording: Perspectives, progress and positivity
…clinical developments and ongoing research including: ALS/MND subtypes (ex. Genetic vs. sporadic, upper vs. lower motor neuron predominant) Tofersen for SOD1 ALS/MND Real world data on riluzole Dextromethorphan/quinidine for bulbar…
Motor neurone disease webinar: Perspectives, progress and positivity
…neuron predominant) Tofersen for SOD1 ALS/MND Real world data on riluzole Dextromethorphan/quinidine for bulbar dysfunction Respiratory strength training exercises High glycaemic index diet Avoiding GLP-1 modulating meds Research on targeting…
Promising MND research from the University of Queensland in early stages
…sporadic, upper vs. lower motor neuron predominant) Tofersen for SOD1 ALS/MND Real world data on riluzole Dextromethorphan/quinidine for bulbar dysfunction Respiratory strength training exercises High glycaemic index diet Avoiding GLP-1…