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Charity Bridge in support of MND NZ on 20 August

…causes dearest to the Royle Epsom Bridge Club members. “Because of the tightknit nature of the bridge playing community, bridge tournaments are an amazing way to raise money for causes…

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Meet Grant, an adventurer with a heart for making a difference

…to complete one last adventure with his friends despite battling MND, joined his mates on this gruelling trek. His grit and determination were evident as he faced falls nearly every…

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Mt Kilimanjaro Trek 2025

…BE COMPLETED WITH INSPIRED ADVENTURES VIA THIS LINK: https://inspiredadventures.com.au/event/mndnz-kilimanjaro-2025/ REGISTER AND PAY HERE Our Challenge Trek to Mt Kilimanjaro is a fantastic collaboration with MND Victoria, who we’re very excited…

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Call for Poetry Submissions: Paul Kelly

…caring for someone who is, or working as a medical professional in the MND community. The goal is to capture the diverse emotions, stories, and insights from the MD experience,…

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MND insight on the AM show

…at MND NZ, on the AM Show sofa on Three discussing motor neurone disease and this weekend’s Walk to Defeat MND. If you missed it, watch the clip here https://m.youtube.com/watch?v=z3CWwBGq8mo…

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Your stories

…keynote speeches. Despite not being able to eat or breathe unassisted, he travels around the US, speaking to audiences (through a computerised voice synthesizer) about the human ability for compassion…

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Occupation and motor neurone disease: A New Zealand Case-control study

…Occupation and Motor Neurone Disease: a New Zealand case-control study – has been published in Occupational & Environmental Medicine. Please click on the link below to access the paper, https://oem.bmj.com/content/76/5/309.full?ijkey=zVCJaVI8H68DFRy&keytype=ref…

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Walk to Defeat MND is back this February!

…this free of charge and without any government funding. Community walks are volunteer organised and take on the atmosphere of the communities they are held in. Some are big, vibrant…

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First New Zealander on Tofersen: Newshub interview with Jimmy

…MND. Read more and watch the news segment, here: www.newshub.co.nz/home/new-zealand/2024/04/motor-neurone-disease-game-changer-treatment-soon-available-in-new-zealand In people of European descent, SOD1 gene mutations cause about 15-30% of MND cases with a family history (familial) and…

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Call for data collection: Newshub interview with Paul

…segment, here: www.newshub.co.nz/home/new-zealand/2024/04/christchurch-man-petitions-for-motor-neurone-disease-to-be-notifiable-after-wife-s-diagnosis. MND NZ believes the collection of comprehensive data is vital for improving the understanding of MND, including possible causes and disease progression, and connecting people with MND…

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You’re invited: Help make time count this MND Action Month

…to make time count for those affected today, as well as supporting research for a future free from MND.   Visit www.mndactionmonth.org.nz for all the details and to sign up….

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SEEKING VOLUNTEER ORGANISERS

…publish the dates and locations of community events as they are confirmed. If you’re not already on our mailing list, sign up below for updates. For further information visit: www.mndwalk.org.nz…

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