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MND Insight Research 2025: Highlights & What’s Next

Advocacy, Community, Research

14 August 2025

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The 2025 MND Insight Research study — formerly known as the MND Insight Survey — has reached a major milestone, thanks to the dedication of our MND community. This collaborative research effort has produced a rich dataset that sheds light on the lived experience of motor neurone disease in Aotearoa New Zealand.

Led by Dr Natalie Gauld ONZM, Research Advisor and Best Practice Advocate at MND NZ, the study identifies what’s working well, where improvements are needed, and how we can advocate for better systems and support. Joining her in the upcoming webinar is MND NZ Chief Executive Mark Leggett, who will share how these insights are already informing real-world change.

📅 Webinar: Tuesday 2 September 2025 at 7.30pm

This session will cover:

  • Key findings from the research
  • How MND NZ is using the data to drive advocacy
  • What’s next for the Insight project
  • Q&A with our speakers


We invite everyone in the MND community to attend and be part of this important conversation.

👉  Register here

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