Led by Grace Chen from Massey University, Wellington the first paper in the series of epidemiological studies into MND has been published. The first paper and findings – Occupation and Motor Neurone Disease: a New Zealand case-control study – has been published in Occupational & Environmental Medicine. Please click on the link below to access the … Read more
Research
Promising research results announced this week from an Australian clinical trial using a compound called copper-ATSM show that the drug is safe and effective in the effort to defeat Motor Neurone Disease. As this breakthrough in research has made headlines, we put together a Q&A with University of Melbourne neuroscientist Associate Professor Peter Crouch to … Read more
The 29th International Symposium on ALS/MND was held on 7-9 December 2018 in Glasgow, UK. This year saw another full and exciting programme with a wide range of topics and presenters from all over the world. For further details on the presentations and presenters from this year’s symposium, please go to https://www.mndassociation.org/symposium/. You may also be … Read more
MND NZ welcomes research into the prevalence of motor neurone disease as we work to better understand this disease in the hope to one day find a cure. The Global Burden of Disease (GBD) study released this week suggests rates in New Zealand may be higher than elsewhere in the world. We plan to meet with the … Read more
“It’s a very exciting time to be involved in MND research. There’s a lot of hope and positivity.” – Professor Matthew Kiernan, Bushell Chair of Neurology, Sydney Medical School The first Australasian MND Symposium, held in March 2018, was an in-depth, technical, fascinating glimpse into current MND research from all over the world. We learned … Read more
We invite you to complete our MND Community Survey. This is our biggest ever survey, and your response is crucial to the future strategy and direction of MND New Zealand. We would really appreciate your input. Today we invite you to complete our MND Community Survey. Our service will be shaped by your input today. This … Read more
A summary of research from the 2018 Australasian MND Symposium. This information will be of interest to health professionals, people living with MND and their families and carers. This update discusses the importance of quality palliative care throughout the course of MND from all health professionals involved. For an easier to read format, please click here … Read more
A summary of research from the 2018 Australasian MND Symposium. This information will be of interest to allied health professionals, people living with MND and their carers. This update discusses the importance of multidisciplinary teams in providing best practice care for people with MND. For an easier to read format, please click here for a PDF … Read more
A summary of research from the 2018 Australasian MND Symposium. This information will be of interest to neurologists and researchers with an interest in MND, and people affected by MND who have a strong interest in scientific research. This update discusses some key global and Australian clinical trials in 2018, the current issues in clinical … Read more
A summary of research from the 2018 Australasian MND Symposium. This information will be of interest to neurologists and researchers with an interest in MND, and people affected by MND who have a strong interest in scientific research. This update discusses the early 2018 drug development pipeline and our current understanding of the disease mechanisms … Read more
A summary of research from the 2018 Australasian MND Symposium. This information will be of interest to people with MND, their carers and health professionals. Below is a broad update about developments in research towards a cure and understanding the causes of MND, including a proposed staging system for MND (similar to that used for … Read more
A summary of research from the 2018 Australasian MND Symposium, regarding the clinical management of MND. This information will be of interest to allied health professionals who work with people with MND in New Zealand. It includes advice about communicating about sensitive subjects, new respiratory research, and developments in assistive communication technology. 1. Clinical Management … Read more