January 30, 2026
First MND Insight Research findings: Many Kiwis missing out on life-extending treatment
Motor Neurone Disease NZ (MND NZ) is delighted to announce the publication of the first academic paper…
Research Articles
Advocacy, Research, Treatments
Clinical News, Education, Research
January 22, 2026
Health Professional Lecture: Motor Neurone Disease – End of Life Care Experiences
Dr Natalie Gauld ONZM, Research Advisor and Best Practice Advocate at MND NZ, will be presenting to…
Advocacy, Community, Research
October 20, 2025
Turning insights into change: how the MND Insight Research study is already making a difference
Research is essential for improving the lives of people with motor neurone disease (MND) and their whānau….
Advocacy, Community, Research
September 29, 2025
Repeat session: MND Insight Research 2025 Highlights webinar
Due to the overwhelming response to our September 2025 webinar, Dr Natalie Gauld and Mark Leggett will…
Awareness, Clinical News, Research
September 1, 2025
New Director announced for the Centre for Brain Research
Motor Neurone Disease NZ welcomes the appointment of Professor Hanneke Hulst as the next Director of the…
Research
August 15, 2025
Genetics Study: New Zealand Motor Neurone Disease Family Study
A research initiative led by Associate Professor Emma Scotter (Centre for Brain Research, The University of Auckland),…
Advocacy, Community, Research
August 14, 2025
MND Insight Research 2025: Highlights & What’s Next
The 2025 MND Insight Research study — formerly known as the MND Insight Survey — has reached…
Research, Treatments
May 9, 2025
Edaravone in Australia: what it means for New Zealanders living with MND
A treatment for motor neurone disease (MND) has been newly added to Australia’s Pharmaceutical Benefits Scheme (PBS),…
Living with MND, NZ MND Registry, Research
April 9, 2025
Lighthouse II trial ends, but research momentum continues
We want to share an important update with our community: the Lighthouse II clinical trial has been…
Community, MND NZ, Research
March 18, 2025
Watch: MND Insight Survey 2025 webinar
The MND Insight Survey 2025 is the most comprehensive survey of the motor neurone disease (MND) community…
Advocacy, MND NZ, Research
March 11, 2025
MND Insight Survey 2025 – your experience matters
Improving care, support, and advocacy for people with MND Motor neurone disease (MND) is life-changing, affecting not…
Advocacy, MND NZ, Research
March 11, 2025
MND research: answering your key questions and driving change
Building a clearer picture of motor neurone disease (MND) to improve care and drive change Research is…