Jodi Clouston lost her Mum to MND in 2011, a heart-wrenching experience that has driven her to make a difference in the lives of people affected by this devastating condition. In 2023, Jodi had the opportunity to run the New York Marathon as a member of Team ALS, the official charity partner for MND in … Read more
Voice banking is the recording of your natural voice while it is still natural and strong, for the possible eventuality of losing your speech. You can voice bank on a mobile phone, computer, or digital voice recorder. As long as the recordings are produced in MP3 format, they can be used later within a speech … Read more
Join us for an unforgettable night of music and community at Ministry of Folk Presents: A Tribute to Neil Young! Taking place in the historic Auckland Guide Centre in Mt Eden, this special event will feature some of the finest alt-folk talent New Zealand has to offer, all coming together for an important cause—supporting people … Read more
We warmly invite all bridge players to our annual charity bridge tournament on Sunday, 15 September 2024, at 1 pm. Hosted by The Royle Epsom Bridge Club, this event holds special significance as we raise funds for Motor Neurone Disease NZ. For many years, MND NZ Board member Estelle and her late husband Geoff led … Read more
Hi, I’m Paul Kelly, a 32-year-old Tasmanian who has been living with motor neurone disease (MND) for the past nine years. I’m excited to announce a special project close to my heart: a poetry collection titled 100 Poems From People Affected by ALS. This anthology will bring together poems from those directly impacted by MND—whether … Read more
Twenty-five years ago, Cassia from the Waikato lost someone incredibly dear to her—a close family friend who was like a second mother, taken too soon by motor neurone disease (MND). “This precious lady was one of my mum’s best friends and an inspiration to me—a truly beautiful human. I still miss her every day,” Cassia … Read more
We know that time is precious, and our organisation is built on the ethos of making time count. This new series is one way we can spotlight your moments and share them with our MND community, because #nothingisordinary. Willie Hellesoe is an ex league player, who came along to the Warriors Ice Bucket Challenge back … Read more
Known for his happy-go-lucky spirit (despite his wife’s description of him as a “serious grumpy old buggar”)
Kua hina he totara i te waonui a TaneA mighty totara has fallen in the forest of Tane. We are deeply saddened that Norm Hewitt’s journey with MND has come to an end. Our thoughts are with his whanau, friends, and all those in the wider community who were touched by the great Norm Hewitt. … Read more
Are you ready to conquer Mt Kilimanjaro? This is your chance to embark on an unforgettable journey while making a difference for people affected by motor neurone disease. In 2025, we’ll embark on the Kilimanjaro Rongai route in Tanzania and reach the summit of 5,895m over nine days. Our Challenge Trek to Mt Kilimanjaro is a … Read more
When retired vet Jonathan Spencer found out in 2021 he had motor neurone disease, it was like being hit with a sledgehammer.
Join us on June 21st at 1 PM at Go Media Stadium for a special event supporting MND NZ! Inspired by her dad, Kristy is raising awareness for motor neurone disease with the help of the One NZ Warriors. Get ice bucketed by a Warrior, meet the players, and bid on exclusive merch. Plus, Te … Read more