Hi, I’m Paul Kelly, a 32-year-old Tasmanian who has been living with motor neurone disease (MND) for the past nine years. I’m excited to announce a special project close to my heart: a poetry collection titled 100 Poems From People Affected by ALS. This anthology will bring together poems from those directly impacted by MND—whether … Read more
Twenty-five years ago, Cassia from the Waikato lost someone incredibly dear to her—a close family friend who was like a second mother, taken too soon by motor neurone disease (MND). “This precious lady was one of my mum’s best friends and an inspiration to me—a truly beautiful human. I still miss her every day,” Cassia … Read more
We know that time is precious, and our organisation is built on the ethos of making time count. This new series is one way we can spotlight your moments and share them with our MND community, because #nothingisordinary. Willie Hellesoe is an ex league player, who came along to the Warriors Ice Bucket Challenge back … Read more
Known for his happy-go-lucky spirit (despite his wife’s description of him as a “serious grumpy old buggar”)
Kua hina he totara i te waonui a TaneA mighty totara has fallen in the forest of Tane. We are deeply saddened that Norm Hewitt’s journey with MND has come to an end. Our thoughts are with his whanau, friends, and all those in the wider community who were touched by the great Norm Hewitt. … Read more
Are you ready to conquer Mt Kilimanjaro? This is your chance to embark on an unforgettable journey while making a difference for people affected by motor neurone disease. In 2025, we’ll embark on the Kilimanjaro Rongai route in Tanzania and reach the summit of 5,895m over nine days. Our Challenge Trek to Mt Kilimanjaro is a … Read more
When retired vet Jonathan Spencer found out in 2021 he had motor neurone disease, it was like being hit with a sledgehammer.
Join us on June 21st at 1 PM at Go Media Stadium for a special event supporting MND NZ! Inspired by her dad, Kristy is raising awareness for motor neurone disease with the help of the One NZ Warriors. Get ice bucketed by a Warrior, meet the players, and bid on exclusive merch. Plus, Te … Read more
We are absolutely delighted to share that Bunnings and our wonderful volunteers raised over $30,000 on Saturday. It has been such a privilege to work with the Bunnings staff and stores, and to meet so many people and hear so many stories of MND. Thank you for all your hard work to bring this to … Read more
As part of MND Action Month, Motor Neurone Disease NZ is teaming up with Bunnings for a NATIONWIDE sausage sizzle on Saturday, 15th June, from 9am to 3pm and we need you! We’re looking for enthusiastic volunteers to assist at 41 Bunnings locations across NZ. Just a couple hours of your time can help make … Read more
When Kristy’s dad Kendall was diagnosed with MND in November 2019, it came as a shock to everyone. “He thought he had a knee injury, and we were expecting him to have surgery and be up and running in no time” recalls Kristy. But this was not to be. The Wellington family managed to squeeze … Read more
It’s not all hot tea and ice buckets this June! Earlier today Taranaki-born Jon Beardmore was interviewed on One Breakfast about his postman adventure in memory of his dad, who passed away from motor neurone disease 18 months ago. In what he calls “the Galapagos Postman Challenge”, Jon has taken 50 letters from an ancient … Read more