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First New Zealander on Tofersen: Newshub interview with Jimmy

This week TV3’s Newshub shared a piece on Jimmy King, the first New Zealander with MND to access Tofersen. Tofersen is an investigational drug developed by Biogen to treat SOD1-type…

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Motor Neurone Disease: investigational drug granted accelerated approval

…with no treatment or cure available, it is a terrifying fate. Tofersen (brand name Qalsody) is an investigational drug developed by the company Biogen to treat MND caused by a…

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“The Australia and New Zealand MND Research symposium gave me hope” 

…cure. While a cure is expected to be decades away, more effective treatments feel a lot closer. Tofersen for SOD-1 gene mutation is a big step forward. There is an…

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Newsletters

…stories from the frontline MND Action Month – take the ice bucket challenge or host a cuppa tea Spotlight on: SOD1 type MND Personal story: Tofersen a game-changer A big…

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