About Us

Our people

National Office

The diverse members of the Motor Neurone Disease New Zealand team combine their expertise to support the MND community and carry out the strategic plan, goals and mission set out by the Board.

Hayley Watkinson
Office Manager

Hayley Forrest

Ph: (09) 624 2148 or 027 3814 446
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Chief Executive

Mark Leggett

Ph: 027 301 3901
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Marketing & Fundraising Manager

Laura Huet

Ph: 027 276 3787
Toni Lightened
MND Support Services Manager

Toni Foster

DHB(s): Auckland
Ph: 021 230 3038
Mnd Team Rob Bloch
Events & Fundraising Coordinator

Rob Bloch

Ph: 027 206 9606
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Communications Specialist

Katya Old

Ph: 027 325 4367
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Grants Coordinator

Jeanette Franklyn

Ph: 027 4572762
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Research Advisor and Best Practice Advocate

Dr Natalie Gauld

Support Advisors

The Motor Neurone Disease NZ Regional Support Advisors provide free, individualised community-based support and advocacy for almost every person with motor neurone disease in New Zealand. They work together with people living with MND, their whanau/families and carers, to enable them to have the best quality of life possible.

Toni Lightened
MND Support Services Manager

Toni Foster

Area(s): Auckland
Ph: 021 230 3038
Sally King
Regional MND Support Advisor

Sally King

Area(s): Northland, North Auckland, Waitemata
Ph: 027 202 8166
Rachel Woodworth Headshot
Regional MND Support Advisor

Rachel Woodworth

Area(s): Auckland and Counties Manukau
Ph: 021 036 0218
Megan Teboekhorst
Regional MND Support Advisor

Megan Rademeyer

Area(s): Waikato, Taranaki, Whanganui (North)
Ph: (07) 870 1496 or 029 773 6662
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Regional MND Support Advisor

Jeanette Tioke

Area(s): Bay of Plenty, Lakes, Hawkes Bay, Tairawhiti
Ph: 029 777 5588
Moira Young
Regional MND Support Advisor

Moira Young

Area(s): Capital & Coast, Hutt, Wairarapa, Mid Central, Whanganui (South)
Ph: (04) 569 2825 or 021 0278 4494
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Regional MND Support Advisor

Jasmine Chua

Area(s): Upper South Island
Ph: 029 777 9944
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Regional MND Support Advisor

Sarah Mathieson

Area(s): Lower South Island
Ph: 027 298 1189

Board

Meet the members of our Board, who combine their experience and expertise to improve the lives of people with MND in New Zealand. Our Board oversees our strategic direction and monitors how we deliver our objectives. The diverse members of the Board combine their experiences and expertise to guide the Chief Executive, who works with the Motor Neurone Disease New Zealand staff to achieve the charity’s mission.

Lucyh
Board Chair

Lucy Haberfield

I am an experienced Corporate Support Manager with a background in Finance. I have been a Chartered Accountant since 1995 and also hold a marketing diploma. I have a particular interest in strategic and business planning.
I am a keen trail runner and multi-sporter, having completed the Captain Cooks Challenge on the Queen Charlotte Track. I am married with three adult children and a daughter-in-law. My husband and I live in Carterton and I commute daily to Wellington.
My history with MND is that my father passed away as a result of MND in 1999. I’m keen to give something back to my community and I feel MND is a good fit.
Alan Stanley 2020
Board Member

Alan Stanley

I am a consultant neurologist currently working in Hawkes Bay, New Zealand. I completed my training in Internal Medicine and Neurology in Cape Town, South Africa. I have been qualified in Neurology since 2015. I moved to New Zealand in 2018.

I have been privileged to care for people with motor neurone disease throughout my career. I have always admired the brave and positive manner in which the majority of people manage to face the condition, however I am also aware of the intense support that they need to help them do this.

Organisations such as MND New Zealand play an extremely important role in providing, coordinating, and advocating for this support at a practical and legislative level.
Estelle3
Board Member

Estelle Arts

Although always aware of MND, I became more intensely aware 2 years ago when my husband was diagnosed with MND. To be able to assist with support, education, research, and advocacy for people with MND and their families is an honour. I have experience of being on a non-for-profit board, and college boards, also reporting to a NFP board in 2 of my career positions, where I pride myself on the ability to communicate in a fully transparent way to the stake holders and serve them in an honest and professional manner.

I have always been aware and ensured I have practised in a voluntary and work environment that any group I’m managing or representing are involved in the discussions or decisions. My working career is extensive and varied - I started my career as a nurse and continued on a part time basis while raising 3 children. Then started my own business in the wool industry. After 10 years I sold the business and moved into the non-for-profit sector as a Development Manager at St Peters College, until moving to the Maritime Museum as the Commercial Manager. Since then, I have been NZ Manager for a variety of international brands like Swarovski, Guess, Monte Blanc and currently Calendar Club.
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Board Member

Patricia Sloan

Tricia brings to her role extensive health and business expertise. Tricia has held senior management roles in the National Health Service (UK), and then worked developing countries prior to coming to New Zealand. Driving for better health outcomes for all New Zealanders through a culture of innovation and improvement are the cornerstones to Tricia’s work ethic.
Peter Brown
Board Member

Peter Brown

I have a background in corporate leadership and management in Australia, Asia/Pacific and New Zealand, where I have held significant private sector and senior public service roles including in the health sector. I also volunteer in a national governance role with Hato Hone St. John. I look forward to bringing my diverse experience to bear at MND NZ to continue to build the organisation's performance, impact and influence across New Zealand and raise the profile of the work and support needed.