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Film Night Fundraiser for MND in Memory of Ronnie  

…individuals and families affected by MND.  Come along, enjoy a classic film, and make a difference in honour of Ronnie. 💙  Buy tickets here: https://www.thevic.co.nz/movie/local-hero-mnd-charity-screening Support Ride for Ronnie: https://mnd-new-zealand-fundraise.raisely.com/t/ride-for-ronnie…

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Thousands Support Sunday’s Walk 2 D’Feet MND

Thousands showed up around the country Sunday in support of their loved ones living with MND and to commemorate those they have lost. All around the New Zealand adults, children…

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Q&A with expert Peter Crouch on recent copper-ATSM trial results

…Crouch to help you get the most accurate information about the latest results and how this will affect the MND community. What is copper-ATSM? It is a compound comprised of…

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It’s MND Awareness Month, and we need your support!

…quantity. To view more stories shared by the MND community, click here. Help raise awareness with our downloadable resources Download and print an ‘About MND’ poster to display in your…

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Neurological Foundation grant – investigating the MND molecular crime scene

…as to how the brain cells die off (many potential ‘murder weapons’). Together, this makes ALS a highly complex disease. However, there is a common feature in ALS pathology, and…

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Pharmac proposal to phase out funding of food thickeners

…ALS: a single-centre prospective cohort study. J Neurol. 2019; 266:1412–20. [PubMed] [Google Scholar] [ii] Halliday V, Zarotti N, Coates E, McGeachan A, Williams I, White S, Beever D, Norman P,…

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Finding laughter and joy in the darkest places

…new day to embrace. It was gut-wrenchingly admirable. I am not sure where he found this strength; he told Mum he just managed to compartmentalise and not think about the…

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Response to new research on higher rates of MND in New Zealand

MND NZ welcomes research into the prevalence of motor neurone disease as we work to better understand this disease in the hope to one day find a cure. The Global…

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2018 Research Update: MND Research News

…is based on understanding the disease mechanisms, biomarker screening, staging model and individual responses to treatment. What causes MND? Why me? Prof Ammar Al-Chalabi Prof of Neurology and Complex Disease…

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End of Life Choice Bill Update

…of ‘talk’ to ‘communicate’ in sections pertaining to someone telling a medical practitioner of their choice, and to include the words ‘communication using assistive speech technology’ to be inclusive of…

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MND New Zealand launch Research Strategy 2019-22

…Zealand launch their 3 year research strategy focusing on cure, care, communication and collaboration. MND New Zealand’s Research Strategy aims to develop a globally connected, comprehensive, national MND research programme….

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From diagnosis to determination: Wayne’s journey with MND

…story to highlight the everyday strength, humour, and perspective that shape our community. His message is simple but powerful: tough days don’t take away who you are. Diagnosed with MND…

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