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MND research: answering your key questions and driving change

…their families. It helps us understand what works, what doesn’t, and where change is needed to provide better care, services, and support. That’s why Motor Neurone Disease NZ is committed…

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Basic facts about MND

…Two people are diagnosed with MND each week. Two people die from MND each week – around 120 deaths per year. The incidence rate in New Zealand is higher than…

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Brain and spinal cord donation

…Auckland. If this is something of interest to you then please discuss the wish with your family who will carry out your wishes when you die. Also, for more information…

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Your stories

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Support Fund

…applications are assessed by the MND NZ support fund committee. The committee follows a standardised procedure for all applications. The decision of the committee is final. Funding is limited, and…

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Alternative treatments

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Support

Online communities Our people Our research strategy Our services Our supporters Planning ahead Privacy Policy Progression of MND Publications and Resources Regular and Payroll giving Research Research Conference Research projects…

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Connect with others

Support Connect with MND communities Support Our services Support Advisors Support Fund Information resources Financial assistance Connect with others MND support groups Online communities Living with MND Breathing and MND…

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First New Zealander on Tofersen: Newshub interview with Jimmy

…MND. Read more and watch the news segment, here: www.newshub.co.nz/home/new-zealand/2024/04/motor-neurone-disease-game-changer-treatment-soon-available-in-new-zealand In people of European descent, SOD1 gene mutations cause about 15-30% of MND cases with a family history (familial) and…

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Call for data collection: Newshub interview with Paul

…segment, here: www.newshub.co.nz/home/new-zealand/2024/04/christchurch-man-petitions-for-motor-neurone-disease-to-be-notifiable-after-wife-s-diagnosis. MND NZ believes the collection of comprehensive data is vital for improving the understanding of MND, including possible causes and disease progression, and connecting people with MND…

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Defying limits and inspiring change

…sixth bodybuilding competition, embracing the discipline of strength training, strict nutrition, and pushing herself beyond her comfort zone. She loved the outdoors, regularly tramping Taranaki’s mountain tracks and Lake Rotokare,…

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You’re invited: Help make time count this MND Action Month

…to make time count for those affected today, as well as supporting research for a future free from MND.   Visit www.mndactionmonth.org.nz for all the details and to sign up….

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