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MND diagnosis on Coronation Street

…with the Coronation Street team to ensure the portrayal is as accurate as possible, within the boundaries of a television drama. Read more about the storyline here: https://www.itv.com/coronationstreet/articles/paul-diagnosed-with-motor-neurone-disease “Coro” has…

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Hard road made easier thanks to love and support

…caring and supportive, it’s awesome. We know we have to play the hand that we’re dealt in life, but without these people it would be so, so much harder.” https://www.nzmg.com/hard-road-made-easier-thanks-to-love-and-support/…

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Film Night Fundraiser for MND in Memory of Ronnie  

…individuals and families affected by MND.  Come along, enjoy a classic film, and make a difference in honour of Ronnie. 💙  Buy tickets here: https://www.thevic.co.nz/movie/local-hero-mnd-charity-screening Support Ride for Ronnie: https://mnd-new-zealand-fundraise.raisely.com/t/ride-for-ronnie…

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Thousands Support Sunday’s Walk 2 D’Feet MND

Thousands showed up around the country Sunday in support of their loved ones living with MND and to commemorate those they have lost. All around the New Zealand adults, children…

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Q&A with expert Peter Crouch on recent copper-ATSM trial results

…Crouch to help you get the most accurate information about the latest results and how this will affect the MND community. What is copper-ATSM? It is a compound comprised of…

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Your stories

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Alternative treatments

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Voice banking

Support Living with MND Support Our services Support Advisors Support Fund Information resources Financial assistance Connect with others MND support groups Online communities Living with MND Breathing and MND Fatigue…

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Neurological Foundation grant – investigating the MND molecular crime scene

…as to how the brain cells die off (many potential ‘murder weapons’). Together, this makes ALS a highly complex disease. However, there is a common feature in ALS pathology, and…

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Pharmac proposal to phase out funding of food thickeners

…ALS: a single-centre prospective cohort study. J Neurol. 2019; 266:1412–20. [PubMed] [Google Scholar] [ii] Halliday V, Zarotti N, Coates E, McGeachan A, Williams I, White S, Beever D, Norman P,…

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Finding laughter and joy in the darkest places

…new day to embrace. It was gut-wrenchingly admirable. I am not sure where he found this strength; he told Mum he just managed to compartmentalise and not think about the…

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Basic facts about MND

…that control the voluntary movement of muscles. ALS (amyotrophic lateral sclerosis) is the most common sub-type of MND. MND is known as ALS in some countries. Upper motor neurones run…

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