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Donna’s Walk to Defeat MND: Honouring Her Mum’s Legacy

…those taking part in the walk—and the wider community—come away with a greater understanding of what MND is and how it affects people’s lives. “A very important message I want…

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Norm Hewitt dies: Former All Black, Dancing with the Stars winner loses battle with motor neurone disease

…an end. Our thoughts are with his whanau, friends, and all those in the wider community who were touched by the great Norm Hewitt. To read the news article: https://www.nzherald.co.nz/sport/rugby/all-blacks/norm-hewitt-dies-former-all-black-dancing-with-the-star-winner-loses-battle-with-motor-neurone-disease…

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Still Time: Reflections on love, loss and life

…dying,” says Robyn. Excerpts from Still Time I missed the call. I’d been teaching period 3, and with exams around the corner had offered a lunchtime tutorial. Ngugi wa Thiong’o,…

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How to host a comedy fundraiser

…and so very sad, I felt a comedy night was a good idea for lifting spirits and bringing some joy. I used the comedian contacts that my sister had, and…

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Health Professional Lecture: Motor Neurone Disease – End of Life Care Experiences

…Dr Gauld will discuss hospice involvement, preparation for end of life, and experiences of assisted dying — sharing evidence that helps health professionals better understand the realities people with MND…

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Walking for a cause: Jeremy Benton’s mission to defeat MND

…Music Festival, adding a unique backdrop to the event. “We might even have some tunes in the background this year,” Jeremy laughs. Why he keeps coming back Despite the effort…

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2018 Research Update: Palliative Care

…those in the health and social services”. NZ application – In theory compassionate communities would help support 90% of those people with healthy grief responses. Compassionate Community engagement depends on…

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Q&A with Paul Manning from Helius Theraputics

…very serious side effects of these pharmaceutical drugs,” he says. With a background of a successful communications and entrepreneurial career coupled with his own health journey, in 2018 Paul decided…

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Joe Cotton competes for MND on Celebrity Treasure Island

The new season of New Zealand reality TV competition Treasure Island starts Monday 30 January 2023 at 7.30pm, with Joe Cotton competing on behalf of Motor Neurone Disease NZ. The…

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Beth Watson and MND NZ

…to support families impacted by motor neurone disease called What Did You Learn Today? There are countless other examples including Beth wearing (and selling) temporary cornflower tattoos and driving around

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Considering gastrostomy

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Best Practice Care

…as well as drawing on best practice clinical guidelines on MND care from the United Kingdom and Canada. Download Best Practice Recommendations Key facts They represent the first step in…

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