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MND New Zealand Strategic Plan 2019-2022

…MND Community Survey conducted in late 2018. The plan sets the direction for our work via our commitment to successfully delivering six strategic priorities, To strive to provide the best…

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Edaravone (Radicava) approved to treat MND in the US – what does this mean for people with MND in New Zealand?

Edaravone is not yet available on prescription in New Zealand. MND New Zealand will keep our community informed about further developments and what they may mean for people with MND…

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NZ Best Practice Recommendations

…as drawing on best practice clinical guidelines on MND care from the United Kingdom and Canada. Download Best Practice Recommendations Key facts They represent the first step in an overall…

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First New Zealander on Tofersen: Newshub interview with Jimmy

…MND. Read more and watch the news segment, here: www.newshub.co.nz/home/new-zealand/2024/04/motor-neurone-disease-game-changer-treatment-soon-available-in-new-zealand In people of European descent, SOD1 gene mutations cause about 15-30% of MND cases with a family history (familial) and…

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Call for data collection: Newshub interview with Paul

…segment, here: www.newshub.co.nz/home/new-zealand/2024/04/christchurch-man-petitions-for-motor-neurone-disease-to-be-notifiable-after-wife-s-diagnosis. MND NZ believes the collection of comprehensive data is vital for improving the understanding of MND, including possible causes and disease progression, and connecting people with MND…

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You’re invited: Help make time count this MND Action Month

…to make time count for those affected today, as well as supporting research for a future free from MND.   Visit www.mndactionmonth.org.nz for all the details and to sign up….

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SEEKING VOLUNTEER ORGANISERS

…plus ensuring the MND NZ Support Service can continue to provide personalised support and advocacy until a cure is found. Each community walk is organised and led by incredible, passionate…

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June 15: National MND sausage sizzle with Bunnings

…sold helps make a difference. For more info about MND Action Month, visit www.mndactionmonth.org.nz. Let’s come together to support those living with MND. See you at Bunnings on June 15th!…

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Important update about COVID-19

…are vulnerable when it comes to flu and viruses, there are measures you can take to protect yourself. The Ministry of Health (MOH) has issued guidelines on how to keep…

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Ministry of Social Development makes temporary changes as part of COVID-19 response

…if someone already has a medical certificate, MSD will use this in their application. When a person doesn’t have any of the usual medical verification (for example a Medical Certificate…

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Congratulations Fulton Hogan, this year’s recipient of the David Oliver Beacon Award!

…Fulton Hogan generously became our Foundation Corporate Sponsor in early 2019, a solution was found and the Fulton Hogan MND New Zealand Support Fund was born. The fund provides additional…

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Support for those living with motor neurone disease

…Plymouth, alongside Jennifer Smart whose mother died of MND. Read the article in the Taranaki Daily News here: https://www.thepost.co.nz/nz-news/350325086/support-those-living-motor-neurone-disease Read more about the support group and how to attend: https://mnd.org.nz/news/new-taranaki-support-group…

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