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Alternative treatments

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Voice banking

Support & Information Living with MND Support & Information Our services Support Advisors Support Fund Information resources Financial assistance Connect with others MND support groups Online communities Living with MND…

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Neurological Foundation grant – investigating the MND molecular crime scene

…as to how the brain cells die off (many potential ‘murder weapons’). Together, this makes ALS a highly complex disease. However, there is a common feature in ALS pathology, and…

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Pharmac proposal to phase out funding of food thickeners

…ALS: a single-centre prospective cohort study. J Neurol. 2019; 266:1412–20. [PubMed] [Google Scholar] [ii] Halliday V, Zarotti N, Coates E, McGeachan A, Williams I, White S, Beever D, Norman P,…

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Finding laughter and joy in the darkest places

…new day to embrace. It was gut-wrenchingly admirable. I am not sure where he found this strength; he told Mum he just managed to compartmentalise and not think about the…

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Basic facts about MND

…that control the voluntary movement of muscles. ALS (amyotrophic lateral sclerosis) is the most common sub-type of MND. MND is known as ALS in some countries. Upper motor neurones run…

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Brain and spinal cord donation

…this is something of interest to you then please discuss the wish with your family who will carry out your wishes when you die. Also, for more information on the…

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Response to new research on higher rates of MND in New Zealand

MND NZ welcomes research into the prevalence of motor neurone disease as we work to better understand this disease in the hope to one day find a cure. The Global…

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2018 Research Update: MND Research News

…is based on understanding the disease mechanisms, biomarker screening, staging model and individual responses to treatment. What causes MND? Why me? Prof Ammar Al-Chalabi Prof of Neurology and Complex Disease…

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End of Life Choice Bill Update

…of ‘talk’ to ‘communicate’ in sections pertaining to someone telling a medical practitioner of their choice, and to include the words ‘communication using assistive speech technology’ to be inclusive of…

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MND New Zealand launch Research Strategy 2019-22

…Zealand launch their 3 year research strategy focusing on cure, care, communication and collaboration. MND New Zealand’s Research Strategy aims to develop a globally connected, comprehensive, national MND research programme….

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MND New Zealand announced as Official Charity of Emirates Team New Zealand

…is a huge honour to be the Official Charity of Emirates Team New Zealand. “We rely almost completely on the generosity of the New Zealand community to continue to provide…

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