…The hand is the most common site of onset of ALS – it’s a vulnerable area for neurodegeneration because it’s so highly evolved. Bulbar-onset patients show the greatest degree of…
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Breathing and MND
…what you can do (PDF) Download Breathing and motor neurone disease: medications and non-invasive ventilation (PDF) MND UK also has a useful fact sheet: Download Support For Breathing Problems (PDF)…
Publications and Resources
…care. NZ Best Practice Recommendations for the Management of MND The first-ever New Zealand based best practice recommendations (BPRs) for the management of MND published by Motor Neurone Disease NZ….
COVID-19 Alert Level 3 – what you need to know
…COVID-19 section on our website here which we are regularly updating. If you have any questions or want to talk through what the move to Alert Level 3 means for…
Q&A with expert Peter Crouch on recent copper-ATSM trial results
…discussion of the phase 1 trial for copper-ATSM can be found here: https://mndresearch.blog/2019/01/15/whats-the-story-with-cuatsm/ Additionally, the website for the drug company running the copper-ATSM clinical trials is: www.colmeddev.com By Sophie Parish…
Information resources
Support & Information Our services Support & Information Our services Support Advisors Support Fund Information resources Financial assistance Connect with others MND support groups Online communities Living with MND Breathing…
2018 Research Update: MND Research News
…for MND are 5-10 years away – technical issues – but it will happen. Precision medicine will complement evidence based medicine. Studies in pre-symptomatic gene carriers are essential. Reason for…
Carers and family
Support & Information Support & Information Our services Support Advisors Support Fund Information resources Financial assistance Connect with others MND support groups Online communities Living with MND Breathing and MND…
About Us
…Policy Progression of MND Publications and Resources Regular and Payroll giving Research Research Conference Research projects Research strategy Resources Share your story Signs and symptoms Strategic plan Support & Information…
Edaravone (Radicava) approved to treat MND in the US – what does this mean for people with MND in New Zealand?
Edaravone is not yet available on prescription in New Zealand. MND New Zealand will keep our community informed about further developments and what they may mean for people with MND…
How is MND diagnosed?
…some of the common tests are listed below. This is not an exhaustive list; there are several other tests your neurologist may order, and you should feel free to enquire…
Alert Level One update from Dr. Emma Scotter about genetics screening and MRI scanning studies at Auckland University
…the COVID-19 pandemic. Now that we are at Level One, we have resumed study enrolment and sample collection and imaging for both our MND genetics and MRI scanning studies. We…