…fundraise and gather donations to keep the charity going. We’re on a mission to raise awareness and funds for Motor Neurone Disease research, and we need your help! Every dollar…
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Motor Neurone Disease Awareness Month – in review
…knowledge of. Raising awareness of motor neurone disease is vital. With increased awareness comes increased understanding, which leads to more funding, more research, and eventually a cure. Motor neurone disease…
Leave a gift in your Will
…to their families/whānau; Advocate for, educate, and provide up-to-date information for people with MND, their families/whānau, as well as the health professionals working with them; Fund and/or support vital MND…
Support for health professionals
…have had limited experience of MND Provide up-to-date, trusted MND information and education Raise awareness and understanding of MND and developments in MND care, treatment and research Promote communication, information…
June 15: National MND sausage sizzle with Bunnings
…sold helps make a difference. For more info about MND Action Month, visit www.mndactionmonth.org.nz. Let’s come together to support those living with MND. See you at Bunnings on June 15th!…
February 18 – Christchurch Walk to Defeat MND event
…tea station, and entertainment! Don’t miss out on the opportunity to get your loved ones together, connect with the MND community, and enjoy a lovely morning at the park. Register…
Update from the New Zealand Motor Neuron Disease Registry regarding COVID-19
…patients through our online registration and consent system – click here to register If you have any enquiries, please click here to send us an email. In addition, please find…
Occupation and motor neurone disease: A New Zealand Case-control study
…Occupation and Motor Neurone Disease: a New Zealand case-control study – has been published in Occupational & Environmental Medicine. Please click on the link below to access the paper, https://oem.bmj.com/content/76/5/309.full?ijkey=zVCJaVI8H68DFRy&keytype=ref…
Medsafe confirms error with changes to Riluzole
…made and ask them to contact Medsafe if required. Thanks to everyone for sharing the issue with us, and for your help advocating on behalf of the MND community 💙…
First MND forum research update webinar a success
…Dr Gethin Thomas, and Dr Molly Swanson for taking the time to share updates on your areas of research and for your ongoing dedication to understanding MND. The webcast is…
Proposed changes to the prescribing of Riluzole – MoH Consultation open until 9th August
…by a specialist physician who cares for people with Motor Neurone Disease. Following recent communication with Medsafe expressing concerns about the above situation, Medsafe agreed to publish a consultation on…
Emirates Team New Zealand launches their first boat and an opportunity for you to get involved!
…to be auctioned off at The Grocery Charity Ball on the 14th September 2019 Not attending the Grocery Ball? Don’t despair, you can still bid on this awesome experience remotely!…