…an afternoon of bridge, followed by afternoon tea, a glass of wine, and plenty of prizes. Let’s come together for a fun-filled day and make a difference! Date: Sunday, 15…
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Gene therapy strategies for MND – Prof. Chris Shaw lecture available to view
…a proliferation of gene therapy programmes for many neurodegenerative disorders. Professor Shaw’s team has led the discovery of several genes responsible for motor neuron disease (MND) and frontotemporal dementia (FTD)…
Climbing for MND and Huntington’s Disease: Kakepuku 10 Challenge
…conditions. Ruth’s training for the event was intense, and she had pushed herself to prepare for what was a mental and physical challenge but says it is nothing compared to…
Support Team Leader Toni Foster shares on the diverse role of MND Support Team.
…whanau, and also information for health professionals. There is information on our MND New Zealand website and links to other helpful websites. Our aim is to provide people with information…
Family Funded Care Update
…by the Ministry, nor make complaints to the Human Rights Commission. The Labour-led government has committed to review and amend the Act. Disability Rights Commissioner Paula Tersoriero said it was…
Get involved
…provide an opportunity for people to come together, raise awareness, honour those living with MND, and commemorate loved ones lost to the disease. Learn more MND Action Month June is…
29th International Symposium on ALS/MND
…‘Periodic Table of MND Research’ summary of the symposium here https://www.mndassociation.org/symposium/symposium-live/ A huge thank you to the MND Association of England, Wales and Northern Ireland for sharing this information and for…
MND New Zealand Strategic Plan 2019-2022
…MND Community Survey conducted in late 2018. The plan sets the direction for our work via our commitment to successfully delivering six strategic priorities, To strive to provide the best…
Prescribing of Rilutek (Riluzole) – what you need to know.
MND Community & Research Advisor Dr. Claire Reilly explains best practice when being prescribed Rilutek (Riluzole). Riluzole is the only drug funded for the treatment of MND in New Zealand….
Lighthouse II phase 3
Research Research projects Research Research projects Genetics study Research Conference Lighthouse II phase 3 Research strategy Brain and spinal cord donation MND Registry NZ Best Practice Recommendations NZ MND Research…
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…Kilimanjaro for MND Embark on an unforgettable journey while making a difference for people affected by motor neurone disease. Your adventure begins March 2025. Learn more News & events Community,…