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Pharmac proposal to phase out funding of food thickeners

…from the ability to walk, eat, talk, swallow, and breathe. It is a highly challenging and ultimately terminal condition, with an average life expectancy of between three and five years….

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David Oliver Beacon Award

The David Oliver Beacon Award is awarded annually, acknowledging and celebrating those who have made a significant contribution to the MND community. The award is open to individuals, groups, and

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MND NZ announced as 2024 NZ Masters Gamesโ€™ charity partner

…research and clinical trials, which is needed to help understand the disease better and develop truly effective treatments. “As well as supporting research, we provide community-based support free of charge…

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Useful equipment

…hand movement. This is a paid-for app. ModelTalker The ModelTalker voice-banking project provides software and assistance to help you ‘bank’ your own voice. Your recordings are then converted to a…

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Considering gastrostomy

…involved in chewing and swallowing, they may eat and drink less than they usually would, cough during mealtimes, take a long time to eat, or be worried and anxious about…

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Dr Natalie Gauld appointed as Research Advisor and Best Practice Advocate

…degrees and has honorary roles in the Department of Paediatrics and School of Pharmacy at the University of Auckland. She is passionate about improving access to medicines and optimising patient…

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Research

A brief history About MND About Us Alternative treatments Annual Reports Basic facts about MND Brain and spinal cord donation Breathing and MND Carers and family Children and young people…

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Basic facts about MND

communities. MND can affect adults at any age but most people diagnosed with MND are over the age of 40, with the highest incidence occurring between the ages of 50…

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The Seymour family story – ‘not just me’

…our car, and then making sure all components are in the car and not left behind, and then making sure they are reconnected correctly before helping me into it. Dare…

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Progression of MND

…most people with MND the intellect and memory are not affected, nor are the senses of sight, hearing, taste, smell, and touch. MND does not directly affect bowel and bladder…

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Join us online Nov 8 for inaugural MND NZ research update webinar

…University of Auckland MND New Zealand Community Forum and reserve your space today. Registration to this webinar event is FREE and open to anyone. Find out more about the trek…

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Congratulations Fulton Hogan, this year’s recipient of the David Oliver Beacon Award!

…announced at our AGM on Saturday, 31st October. The purpose of the award is for MND New Zealand to honour, acknowledge, and celebrate individuals, groups, businesses, or services providing a…

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