…Researchers to find out what they’re working on and what they valued most about attending the conference. Paige is a PhD student at the School of Psychology, Speech and Hearing…
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Support & Information
A brief history About MND About Us Alternative treatments Annual Reports Basic facts about MND Brain and spinal cord donation Breathing and MND Carers and family Children and young people…
2018 Research Update: Multidisciplinary Clinics
…Health professionals gain experience and expertise in ALS care, learning from patients and family caregivers when supported in a clinical environment dedicated to ALS care. Patients’ attendance rates at specialised…
It’s MND Awareness Month, and we need your support!
…awareness month we will also be launching a new awareness and fundraising campaign on Global ALS/MND Awareness Day (21st June). More details to come! New look for MND New Zealand…
Proposed changes to the prescribing of Riluzole – MoH Consultation open until 9th August
…the correct prescription, and an adequate supply of Rilutek if you are currently taking it. We will let you know about any future changes on our website and Facebook. Please…
Common difficulties
…nurse or GP for advice. Saliva and mucus If swallowing becomes a problem an excess of saliva may pool in the mouth, or the saliva may become thick and sticky….
Signs and symptoms
…MND the senses of sight, hearing, taste, smell and touch are not affected. Bladder and bowel – The bowels and bladder are not affected by the disease, although diet and…
Walk to Defeat MND is back this February!
…away a person’s ability to walk, talk, feed themselves, swallow, and ultimately breathe. There are around 400 people with MND at any given time across New Zealand, and there is…
Types of MND
…also later be affected. PBP affects about a quarter of people diagnosed, and involves both the upper and lower motor neurones. Progressive muscular atrophy (PMA) Progressive muscular atrophy affects only…
Support Fund
…and MND Fatigue and sleep Considering gastrostomy Alternative treatments Voice banking Common difficulties Useful equipment Transport and getting about Your stories Health and social care Types of care and who…
Fatigue and sleep
…help moving about in bed an electric bed can be adjusted to a variety of positions at the push of a button side rails, bedside furniture and extra pillows can…
MND Awareness
…Month Host a Cuppa Tea for MND Cuppa Tea for MND events are held across New Zealand during June as part of MND Action Month. These events highlight the impact…