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Lighthouse II – NZ’s first multi-site phase 3 clinical trial announced

testimony to the incredible fundraising support from across Aotearoa. It also represents years of effort by MND New Zealand, advocating for our community and establishing systems that connect those of…

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Resources

…Association. ALS Research News The latest research articles and news from ALS.net and ALS-TDI.org. MND Australia research newsletter MND Australia produces two research newsletters to keep readers up to date…

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Volunteer & Gifts in Kind

…Disease NZ can help us to reduce our running costs and allow us to concentrate our funding on reaching our goals. Could your company donate meeting space, technology solutions, or…

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MND New Zealand launch Research Strategy 2019-22

As part of Awareness Week 2019, MND New Zealand launch their 3 year research strategy focusing on cure, care, communication and collaboration. As part of Awareness Week 2019, MND New…

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Update from the New Zealand Motor Neurone Disease Registry regarding COVID-19

In light of the most recent COVID-19 lockdown period, affecting Auckland and now lowering of alert levels again across the country, we want to let you know what we are…

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Outcome of consultation on the changes to the prescribing restrictions of riluzole

…Medsafe on the consultation and outcome. MND New Zealand are pleased with this outcome and agree that it is important for all people living with MND to have adequate access…

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Ending Life Well – A podcast series for carers

…at the end of life. Created by a specialist palliative care team and supported by Hospice New Zealand, Ending Life Well provides practical, compassionate advice for carers who may feel…

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Newsletters

…2024 This issue is packed with information for people and families affected by MND: Living well with MND – “Returning to painting and photography has given me a voice” Moira’s…

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Pesticides Linked To Increased Risk Of MND

…at MND England, Wales and Northern Ireland, explains: “We know that people get MND due to a combination of many environmental, lifestyle and genetic factors. It’s unlikely that any single…

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Regular and Payroll giving

…as much as you like, but over time, every contribution adds up to something amazing. Setting up an automatic payment from your account, or setting up a direct debit for…

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Corporate partnerships

…also support your activities and give inspirational ideas to help you reach your fundraising targets and Corporate Social Responsibility objectives. Current corporate partner: More information Talk to MND about how…

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NZ MND Research Network

and other researchers who will have an impact on MND in New Zealand. Dr Emma Scotter (Centre for Brain Research, The University of Auckland), says: “With a cohort of only…

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