…feedback, provided real life experience, and assisted us as we advocated on behalf of the MND community for funded access to food thickeners. Read the background and August 2023 PTAC…
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Thank you, Bunnings NZ & Supporters!
…stores, and to meet so many people and hear so many stories of MND. Thank you for all your hard work to bring this to life and for making a…
Professor Chris Shaw appointed to Hugh Green Chair
…for Amyotrophic Lateral Sclerosis Research (2012) and “Kea World Class New Zealander Award” (2019). Professor Shaw is clinically active, running an ALS patient clinic at King’s College Hospital and leading clinical trials of advanced gene therapies….
Online communities
…Breathing and MND Fatigue and sleep Considering gastrostomy Alternative treatments Voice banking Common difficulties Useful equipment Transport and getting about Your stories Health and social care Types of care and…
Health and social care
…Fatigue and sleep Considering gastrostomy Alternative treatments Voice banking Common difficulties Useful equipment Transport and getting about Your stories Health and social care Types of care and who provides them…
February 25 – Auckland Walk to Defeat MND event
…located at the corner of Beaumont Street and Jellicoe Street, Auckland CBD 1010 and just a stones throw from our friends over at Emirates Team New Zealand. Purchase tickets online…
Come Together 2024 โ Charity Auction
…funds for support and research. Come Together brings together a supergroup of the best NZ artists and musicians to collaborate and perform legendary albums in their entirety, live in concert….
Genetics study
…no longer recruiting for the study. For more information contact Dr Emma Scotter via email: emma.scotter@auckland.ac.nz or MNDresearchstudy@auckland.ac.nz. Frequently Asked Questions What samples and information would I need to give?…
What we do
…create and provide accurate and reliable information about MND. Advocate: We raised awareness of MND; for better understanding, greater visibility, and vital funding. Research: We actively support research for MND….
Alert Level One update from Dr. Emma Scotter about genetics screening and MRI scanning studies at Auckland University
To all participants and potential participants in our University of Auckland/ADHB MND genetics screening and MRI scanning studies, we hope you are well and thank you for your patience during…
MND New Zealand Strategic Plan 2019-2022
…MND and strengthen our presence and capacity as the leading authority on MND in New Zealand To develop effective strategic partnerships and collaborations, working together to achieve more for people…
Waiheke Distilling Co Hosts G&T for MND
…a blue themed G&T (a take on the Cuppa Tea for MND) and pair this with my own ice bucket challenge,” Jo adds. This one-of-a-kind cocktail will be available throughout…