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Finding laughter and joy in the darkest places

only charity focused on improving quality of life, funding research and campaigning for people affected by MND in NZ. MND NZ is raising funds to support promising research that’s happening…

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Dr Natalie Gauld appointed as Research Advisor and Best Practice Advocate

…centred care, and brings extensive experience in health care innovation, implementation and evaluation. Her work included successful applications and tools for prescription to non-prescription reclassifications (switches), including ground-breaking and award-winning…

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Kiwis living with motor neurone disease to benefit from Emirates Team New Zealand’s charity partnership with MND New Zealand  

completely on the generosity of the New Zealand community to continue to provide free, personalised support to people living with MND, their carers, and families. We are so grateful to…

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MND Registry

Research Research Research projects Genetics study Research Conference Lighthouse II phase 3 Research strategy Brain and spinal cord donation MND Registry NZ Best Practice Recommendations NZ MND Research Network Resources…

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Common difficulties

download the PDF below. Download Information on Saliva Control (PDF) Coughing and feeling of choking These may occur as a result of food or saliva becoming lodged in the airway,…

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End of Life Choice Bill – our submission

…MND New Zealand is committed to ongoing support for the right of people with motor neurone disease to take any decision or action that is lawful. 6 March 2018 Submission

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Dr Emma Scotter: MNZM for services to MND

…while all at-risk relatives of participants with the MND causing mutation are connected to genetic counselling and testing. In one case, this enabled pre-implantation genetic testing so that the grandchild…

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Free financial fitness online programme

Independent Living Services’ Comfortable with Money workshops are back for 2024. Join the programme and take back control of your finances. First intake for 2024: Weekly on Wednesdays from March…

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Support Fund

Support & Information Our services Support & Information Our services Support Advisors Support Fund Information resources Financial assistance Connect with others MND support groups Online communities Living with MND Breathing…

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Alternative treatments

…embarking on unproven therapies. It is important to discuss the likely benefits of expensive therapy compared with, for example, changes to the home, employment of additional home assistance, or the…

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Australasian MND Symposium – our final summary

…have agreed on are: smoking, trauma (eg broken bone, surgery), diesel fumes, exercise, being a war veteran (see page 16 for New Zealand research). There was also some valuable research

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Newly diagnosed?

…reading online medical journals, websites, or information about research. Remember not all information on the internet is factual or necessarily applicable to you. Others prefer to get information in person

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