…aged care development context. He is passionate about delivering quality health and support services and brings extensive experience in general management in complex settings, strategic business development, and leadership and…
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Treatment and medication
…Fatigue and sleep Considering gastrostomy Alternative treatments Voice banking Common difficulties Useful equipment Transport and getting about Your stories Health and social care Types of care and who provides them…
Make a nomination for the 2023 David Oliver Beacon Award
Nominations for the David Oliver Beacon Award 2023 are open! The David Oliver Beacon Award is awarded annually, acknowledging, and celebrating those who have made a significant contribution to the…
Participants needed in new genetics study
…of Auckland and supports the latest genetics study. Dr. Emma Scotter (Centre for Brain Research, University of Auckland), Dr. Richard Roxburgh (Neurogenetics Clinic, Auckland City Hospital), and collaborators are now…
Best practice guidelines published to improve MND care in NZ
…experts in MND care and treatment. “This is a first and a milestone for standardising and promoting world class MND holistic clinical care across Aotearoa New Zealand, ” says Sir…
Pharmac committee recommends continued funding of food thickeners for people with MND
…feedback, provided real life experience, and assisted us as we advocated on behalf of the MND community for funded access to food thickeners. Read the background and August 2023 PTAC…
Thank you, Bunnings NZ & Supporters!
…stores, and to meet so many people and hear so many stories of MND. Thank you for all your hard work to bring this to life and for making a…
Professor Chris Shaw appointed to Hugh Green Chair
…for Amyotrophic Lateral Sclerosis Research (2012) and “Kea World Class New Zealander Award” (2019). Professor Shaw is clinically active, running an ALS patient clinic at King’s College Hospital and leading clinical trials of advanced gene therapies….
Online communities
…and medication Planning ahead Carers and family Children and young people On this page Kiwi MND/ALS Facebook Group This is a community-run, New Zealand wide group for people affected by…
Health and social care
…gastrostomy Alternative treatments Voice banking Common difficulties Useful equipment Transport and getting about Your stories Health and social care Types of care and who provides them Treatment and medication Planning…
February 25 – Auckland Walk to Defeat MND event
…located at the corner of Beaumont Street and Jellicoe Street, Auckland CBD 1010 and just a stones throw from our friends over at Emirates Team New Zealand. Purchase tickets online…
Trio riding 5,150kms for motor neurone disease
…a challenge and sees this as an opportunity to join friends in raising money to assist a very worthy cause; maybe there’s a touch of madness as well,” says rider…