…at home for as long as she did, it was about quality not quantity for mum and they helped us achieve that. My advice to anyone newly diagnosed and their…
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Planning ahead
…or general practitioner for more advice. Templates for Advance Directives are available on the New Zealand Medical Association and Health and Disability Commissioner websites. More information is also available on…
Australasian MND Symposium – live blog (Day 2)
…ALS Assoc has been comitted to investing in large data – clinical and environmental information. Really need to understand more about the whole of a person living with MND and…
Transport and getting about
…record of your needs (www.abta.com/tips-and-advice/accessible-travel). Add this to a file of paperwork to take with you, along with copies of clinic letters, confirmation of diagnosis, and a list of medications….
Life members
…emerging fieldwork service and opportunities for fieldworkers to meet and develop their knowledge and skills evolved. Some highlights: Collecting after the Seekers concerts; goodwill and liaison with Australian groups; agreeing…
2018 Research Update: Clinical Trials
…Australia Objective: Trial high CBD, low THC cannabidiol (CBD) in pwMND to study the efficacy extending ALS survival and alleviating symptoms such as spasticity, pain, weight loss and assess quality…
2018 Research Update: Clinical Management
…CEO of Control Bionics Inc, Australia robwong@controlbionics.com • Wearable and wireless EMG assistive communication and control device, developed in Australia. Allows switch-like access to computer, choose commands based on left-right…
Australasian MND Symposium – live blog (Day 1)
…define fALS: frontotemporal dementia, schizophrenia, ataxia. The terms familial ALS and sporadic ALS are outdated and illogical, says @AmmarAlChalabi –and it’s time to ditch them. #ALS #MND https://t.co/TKD6WFdolh pic.twitter.com/XDLBsZnjJw —…
Australasian MND Symposium – live blog (Day 3)
…early intervention and needs-based supports for pwMND Our Vision: A world without MND Our Mission: To promote, influence and advance MND care and research to improve the lives of all…
2018 Research Update: Drug Development
…used to test gene therapy and antisense – to help solves the problem in dogs too. Biomarker discovery improves diagnosis, helps stratify clinical trials. www.alsa.org/research/clinical-trials/ Antisense therapy & ALS Association…
Carers and family
…life. People do go into hospice for short stays and return home again., The experience and expertise brought by the hospice movement is an invaluable tool for a carer for…