Take part in research
Thank you for your interest in participating in MND research.
MND New Zealand maintains the NZ MND Registry which connects people with MND to researchers, informing participants if they are a suitable candidate for research studies. It is run by A/Prof Richard Roxburgh from the Neurology Department at Auckland City Hospital.
The MND Registry collects demographic, contact and clinical information, as well as genetic information if this is known. Data is stored anonymously in a secure online database.
Alternatively you can sign-up for the registry online by completing the participant information consent form.