Welcome to our research blog. Here, we post snippets of interesting news related to MND research, from around the world.
For up-to-date MND research from around the world, in-depth research news and the most current information, you may wish to look at the websites listed here.
For an easier to read format, please click here for a PDF of the text below. 1. Global MND Clinical Trials Overall, there are more new therapeutic approaches to MND than ever before, increasing the likeihood that new therapies will soon be available that provide a meaningful impact on the lives […] READ MORE
For an easier to read format, please click here for a PDF of the text below. 1. Drug Development Overview ALS is not one disease. Will not be solved by one treatment. Genetics discoveries point to the pathways for disease. 18 clinical trials have failed in the last decade. Failure […] READ MORE
For an easier to read format, please click here for a PDF of the text below. “It’s a very exciting time to be involved in MND research. There’s a lot of hope and positivity” – Prof Matthew Kiernan, Bushell Chair of Neurology, Sydney Medical School. “I’m really optimistic for the […] READ MORE
1. Clinical Management Golden Rules Equipment Communication Comfort Care 2. Respiratory/NIV Ventilatory assistance overnight Ventilatory assistance during the day NIV: When to start, when to stop 3. Augmentive & Assistive Communication Eye gaze Voice banking Neuronode For an easier to read format, please click here for a PDF of the […] READ MORE
6 March 2018 Submission on the End of Life Choice Bill From The Motor Neurone Disease Association of New Zealand Download as PDF Motor neurone disease (MND) is a fatal neurological condition that causes rapidly increasing disability and loss of independence. It frequently strikes healthy people in middle age. […] READ MORE
UPDATES FROM AUSTRALIA AND THE WORLD 8:45am Carol Birks (CEO, MND Australia) – 10 years of NDIS influencing to ensure early intervention and needs-based supports for pwMND Our Vision: A world without MND Our Mission: To promote, influence and advance MND care and research to improve the lives of all […] READ MORE
DRUG DEVELOPMENT AND CLINICAL TRIAL DESIGN SESSION 8:30am Dr Lucie Bruijn – Opportunities and Advances in Drug Development for ALS Rate of progress in recent years is very exciting. Explore therapeutics approaches as any one could make a big impact on ALS – small molecules, antisense therapy, and biologics (stem […] READ MORE
The team from MND New Zealand are at the inaugural Australasian MND Symposium hosted by Fight MND. We will be bringing you live updates over the next three days – mostly from the biomedical stream, which covers the latest in MND research. Our support team members are attending the clinical […] READ MORE
With the increasing interest in medicinal cannabis for pain management and with the Misuse of Drugs (Medicinal Cannabis) Amendment Bill in Parliament at Select Committee, MND New Zealand wanted to be in a position to contribute to informed debate around the use of medicinal cannabis for management of the symptoms […] READ MORE
We are thrilled to announce that the website of the New Zealand MND Research Network (www.mndresearch.auckland.ac.nz) launched on November 1st 2017. The Research Network website’s purpose is to provide a central location informing others of all MND-related research in New Zealand. It profiles six research groups currently doing work that […] READ MORE
The New Zealand Motor Neurone Disease Registry was launched on on Monday 22 May 2017, just eight months after 4000 participants in 14 fundraising walks all over New Zealand raised the funds to establish the Registry. Dr Claire Reilly, the coordinator of the nationwide Walk 2 D’Feet MND fundraising events, […] READ MORE
On Friday 5 May, the US Food and Drug Administration (the FDA) announced its approval of the drug ‘edaravone’ for the treatment of MND. This is exciting news. The FDA is the organisation that approves medication in America according to its safety and effectiveness. Edaravone is the first MND medication to […] READ MORE