Welcome to our research blog. Here, we post snippets of interesting news related to MND research, from around the world.
For up-to-date MND research from around the world, in-depth research news and the most current information, you may wish to look at the websites listed here.
Today we invite you to complete our MND Community Survey. Our service will be shaped by your input today. This is our biggest ever survey, and your response is crucial to the future strategy and direction of MND New Zealand. We would really appreciate your input. Please complete only one of the following 5 […] READ MORE
For an easier to read format, please click here for a PDF of the text below. Palliative Approach to MND There is increasing evidence that palliative care, integrated in a multidisciplinary approach to care, leads to improved symptoms and quality of life in pwMND and their families. These outcomes can […] READ MORE
For an easier to read format, please click here for a PDF of the text below. Multidisciplinary Clinics This summary is based information presented by Paul Talman, clinical session 6B, and discussions with staff at Calvary Healthcare Bethlehem (Dr Susan Mathers, Dr Paul Talman and Occupational Therapist Sarah Solomon). It also summarises […] READ MORE
For an easier to read format, please click here for a PDF of the text below. 1. Global MND Clinical Trials Overall, there are more new therapeutic approaches to MND than ever before, increasing the likeihood that new therapies will soon be available that provide a meaningful impact on the lives […] READ MORE
For an easier to read format, please click here for a PDF of the text below. 1. Drug Development Overview ALS is not one disease. Will not be solved by one treatment. Genetics discoveries point to the pathways for disease. 18 clinical trials have failed in the last decade. Failure […] READ MORE
For an easier to read format, please click here for a PDF of the text below. “It’s a very exciting time to be involved in MND research. There’s a lot of hope and positivity” – Prof Matthew Kiernan, Bushell Chair of Neurology, Sydney Medical School. “I’m really optimistic for the […] READ MORE
1. Clinical Management Golden Rules Equipment Communication Comfort Care 2. Respiratory/NIV Ventilatory assistance overnight Ventilatory assistance during the day NIV: When to start, when to stop 3. Augmentive & Assistive Communication Eye gaze Voice banking Neuronode For an easier to read format, please click here for a PDF of the […] READ MORE
6 March 2018 Submission on the End of Life Choice Bill From The Motor Neurone Disease Association of New Zealand Download as PDF Motor neurone disease (MND) is a fatal neurological condition that causes rapidly increasing disability and loss of independence. It frequently strikes healthy people in middle age. […] READ MORE
UPDATES FROM AUSTRALIA AND THE WORLD 8:45am Carol Birks (CEO, MND Australia) – 10 years of NDIS influencing to ensure early intervention and needs-based supports for pwMND Our Vision: A world without MND Our Mission: To promote, influence and advance MND care and research to improve the lives of all […] READ MORE
DRUG DEVELOPMENT AND CLINICAL TRIAL DESIGN SESSION 8:30am Dr Lucie Bruijn – Opportunities and Advances in Drug Development for ALS Rate of progress in recent years is very exciting. Explore therapeutics approaches as any one could make a big impact on ALS – small molecules, antisense therapy, and biologics (stem […] READ MORE
The team from MND New Zealand are at the inaugural Australasian MND Symposium hosted by Fight MND. We will be bringing you live updates over the next three days – mostly from the biomedical stream, which covers the latest in MND research. Our support team members are attending the clinical […] READ MORE
With the increasing interest in medicinal cannabis for pain management and with the Misuse of Drugs (Medicinal Cannabis) Amendment Bill in Parliament at Select Committee, MND New Zealand wanted to be in a position to contribute to informed debate around the use of medicinal cannabis for management of the symptoms […] READ MORE