Research News

Summary of study provided by lead investigator Paige Thomas (PhD); Rose Centre for Stroke Recovery and Research, Department of Communication Disorders, University of Canterbury, Christchurch For individuals with MND swallowing is often impacted, leading to difficulties with eating and drinking. We investigated a new type of swallowing therapy that uses […] READ MORE

This year’s symposium was held virtually from 9 – 11 December. For further details on the presentations and presenters from this year’s symposium, please go to https://symposium.mndassociation.org You may also be interested in the cleverly designed ‘Periodic Table of MND Research’ summary of the symposium here: https://symposium.mndassociation.org/periodic-table/   READ MORE

In light of the most recent COVID-19 lockdown period, affecting Auckland and now lowering of alert levels again across the country, we want to let you know what we are doing in response to the current situation. In March, plans were put in place to enable Registry staff to continue […] READ MORE

Results from a study investigating if  ‘a lack of social support and perceived stigma contributes to psychological distress in people with MND’ has been accepted for publication in the British Journal of Health Psychology. The study, led by Natalie Leigh from Lancaster University in England, was conducted using an online […] READ MORE

To all participants and potential participants in our University of Auckland/ADHB MND genetics screening and MRI scanning studies, we hope you are well and thank you for your patience during the COVID-19 pandemic.  Now that we are at Level One, we have resumed study enrolment and sample collection and imaging […] READ MORE

Having entered a nationwide Alert Level 4 COVID-19 lock-down period, we want to let you know what we are doing in response to current situation. Because the Registry is based in the Auckland DHB, we have put plans in place to enable Registry staff to continue to work from home […] READ MORE

To all participants and potential participants in our University of Auckland/ADHB MND genetics screening and MRI scanning studies, Due to the COVID-19 pandemic, to ensure that participating in our research remains safe and you don’t need to go out to have scans done or to have blood samples taken, we […] READ MORE

A ground-breaking MND clinical drug trial is about to launch in Scotland. The platform, MND-SMART, is a UK-wide trial which aims to find treatments that can slow, stop or reverse the progression of MND. While clinical trials usually focus on a single drug, MND-SMART will allow more than one treatment […] READ MORE

On Monday 9th December, in conjunction with the MND Research Network, we proudly hosted the Inaugural MND New Zealand Research Conference at the Cordis Hotel in Auckland. It was a momentous occasion, gathering 16 speakers, both national and international experts, to discuss the latest updates in MND Research. The Morning’s […] READ MORE

A huge thank you to all of the guest speakers and for everyone who attended. Please enjoy the video of the afternoon. If you have any questions about the presentations please contact us at any time.   Please find the presentation slides from MND Registry Curator, Kerry Walker here, and […] READ MORE

As part of Awareness Week 2019, MND New Zealand launch their 3 year research strategy focusing on cure, care, communication and collaboration.  MND New Zealand’s Research Strategy aims to develop a globally connected, comprehensive, national MND research programme. Introduction Based on data from international studies, it is estimated that there […] READ MORE

The first paper and findings – Occupation and Motor Neurone Disease: a New Zealand case-control study – has been published in Occupational & Environmental Medicine. Please click on the link below to access the paper, https://oem.bmj.com/content/76/5/309.full?ijkey=zVCJaVI8H68DFRy&keytype=ref READ MORE