Research News

Welcome to our research blog.

Here, we post snippets of interesting news related to MND research, from around the world.

For more in-depth research news and the most current information, you may also wish to look at the websites listed here.

JUMP TO CONTENTS 1. Clinical Management Golden Rules Equipment Communication Comfort Care 2. Respiratory/NIV Ventilatory assistance overnight Ventilatory assistance during the day NIV: When to start, when to stop 3. Augmentive & Assistive Communication Eye gaze Voice banking Neuronode 1. Clinical Management Simple, practical measures can make a huge difference […] READ MORE

Posted on: 24th May Posted by: MND NZ
Assisted dying (definition)

6 March 2018 Submission on the End of Life Choice Bill From The Motor Neurone Disease Association of New Zealand Download as PDF   Motor neurone disease (MND) is a fatal neurological condition that causes rapidly increasing disability and loss of independence. It frequently strikes healthy people in middle age. […] READ MORE

Posted on: 27th March Posted by: MND NZ
Australasian MND Symposium 2018 - day 3

UPDATES FROM AUSTRALIA AND THE WORLD 8:45am Carol Birks (CEO, MND Australia) – 10 years of NDIS influencing to ensure early intervention and needs-based supports for pwMND Our Vision: A world without MND Our Mission: To promote, influence and advance MND care and research to improve the lives of all […] READ MORE

Posted on: 24th March Posted by: MND NZ
Australasian MND Symposium 2018 - day 2

DRUG DEVELOPMENT AND CLINICAL TRIAL DESIGN SESSION 8:30am Dr Lucie Bruijn – Opportunities and Advances in Drug Development for ALS Rate of progress in recent years is very exciting. Explore therapeutics approaches as any one could make a big impact on ALS – small molecules, antisense therapy, and biologics (stem […] READ MORE

Posted on: 23rd March Posted by: MND NZ

The team from MND New Zealand are at the inaugural Australasian MND Symposium hosted by Fight MND. We will be bringing you live updates over the next three days – mostly from the biomedical stream, which covers the latest in MND research. Our support team members are attending the clinical […] READ MORE

Posted on: 22nd March Posted by: MND NZ
Cannabis sativa plant

With the increasing interest in medicinal cannabis for pain management and with the Misuse of Drugs (Medicinal Cannabis) Amendment Bill in Parliament at Select Committee, MND New Zealand wanted to be in a position to contribute to informed debate around the use of medicinal cannabis for management of the symptoms […] READ MORE

Posted on: 27th February Posted by: MND NZ
NZ MND Research Network website

We are thrilled to announce that the website of the New Zealand MND Research Network (www.mndresearch.auckland.ac.nz) launched on November 1st 2017. The Research Network website’s purpose is to provide a central location informing others of all MND-related research in New Zealand. It profiles six research groups currently doing work that […] READ MORE

Posted on: 20th December Posted by: MND NZ
Frame from the New Zealand MND Registry launch video

The New Zealand Motor Neurone Disease Registry was launched on on Monday 22 May 2017, just eight months after 4000 participants in 14 fundraising walks all over New Zealand raised the funds to establish the Registry. Dr Claire Reilly, the coordinator of the nationwide Walk 2 D’Feet MND fundraising events, […] READ MORE

Posted on: 24th May Posted by: MND NZ
The US Food and Drug Administration building

On Friday 5 May, the US Food and Drug Administration (the FDA) announced its approval of the drug ‘edaravone’ for the treatment of MND. This is exciting news. The FDA is the organisation that approves medication in America according to its safety and effectiveness. Edaravone is the first MND medication to […] READ MORE

Posted on: 10th May Posted by: MND NZ
Organically grown vegetables

New research has confirmed a link between pesticides and an increased risk of MND… but don’t panic and chuck out all your non-organic veggies just yet. It’s specifically to do with exposure at work to organochlorine pesticides, many of which are now banned (like DDT). Read more about this interesting line […] READ MORE

Posted on: 31st August Posted by: MND NZ
Pills

Another interesting finding in the ongoing hunt for MND treatments comes from University of Tokyo researchers, who have discovered that a safe, existing anti-epileptic drug called perampanel has successfully prevented the death of motor neurons in mice with an animal model of MND. Their research shows that perampanel is worthy […] READ MORE

Posted on: 8th July Posted by: MND NZ
TDP-43

If you looked at the motor neurones of people with MND down the microscope, you would see clumps of a protein called TDP-43. Researchers around the world are working to find why these clumps form and how they are linked to MND. Dr Jemeen Sreedharan has been looking at the […] READ MORE

Posted on: 29th June Posted by: MND NZ
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