Research News

Promising research results announced this week from an Australian clinical trial using a compound called copper-ATSM show that the drug is safe and effective in the effort to defeat Motor Neurone Disease. It has taken the Melbourne-based research team 15 years of working with the compound to get to this […] READ MORE

For further details on the presentations and presenters from this year’s symposium, please go to https://www.mndassociation.org/symposium/. You may also be interested in the cleverly designed ‘Periodic Table of MND Research’ summary of the symposium here https://www.mndassociation.org/symposium/symposium-live/  A huge thank you to the MND Association of England, Wales and Northern Ireland for sharing […] READ MORE

The first Australasian MND Symposium, held in March 2018, was an in-depth, technical, fascinating glimpse into current MND research from all over the world. We learned there are more therapeutic approaches being developed for MND than ever before, increasing the likelihood that new therapies will become available that provide a […] READ MORE

Today we invite you to complete our MND Community Survey. Our service will be shaped by your input today. This is our biggest ever survey, and your response is crucial to the future strategy and direction of MND New Zealand. We would really appreciate your input.   Please complete only one of the following 5 […] READ MORE

For an easier to read format, please click here for a PDF of the text below.   Palliative Approach to MND There is increasing evidence that palliative care, integrated in a multidisciplinary approach to care, leads to improved symptoms and quality of life in pwMND and their families. These outcomes can […] READ MORE

For an easier to read format, please click here for a PDF of the text below. Multidisciplinary Clinics This summary is based information presented by Paul Talman, clinical session 6B, and discussions with staff at Calvary Healthcare Bethlehem (Dr Susan Mathers, Dr Paul Talman and Occupational Therapist Sarah Solomon). It also summarises […] READ MORE

For an easier to read format, please click here for a PDF of the text below. 1. Global MND Clinical Trials Overall, there are more new therapeutic approaches to MND than ever before, increasing the likeihood that new therapies will soon be available that provide a meaningful impact on the lives […] READ MORE

For an easier to read format, please click here for a PDF of the text below. 1. Drug Development Overview ALS is not one disease. Will not be solved by one treatment. Genetics discoveries point to the pathways for disease. 18 clinical trials have failed in the last decade. Failure […] READ MORE

For an easier to read format, please click here for a PDF of the text below. “It’s a very exciting time to be involved in MND research. There’s a lot of hope and positivity” – Prof Matthew Kiernan, Bushell Chair of Neurology, Sydney Medical School. “I’m really optimistic for the […] READ MORE

1. Clinical Management Golden Rules Equipment Communication Comfort Care 2. Respiratory/NIV Ventilatory assistance overnight Ventilatory assistance during the day NIV: When to start, when to stop 3. Augmentive & Assistive Communication Eye gaze Voice banking Neuronode For an easier to read format, please click here for a PDF of the […] READ MORE

6 March 2018 Submission on the End of Life Choice Bill From The Motor Neurone Disease Association of New Zealand Download as PDF   Motor neurone disease (MND) is a fatal neurological condition that causes rapidly increasing disability and loss of independence. It frequently strikes healthy people in middle age. […] READ MORE

UPDATES FROM AUSTRALIA AND THE WORLD 8:45am Carol Birks (CEO, MND Australia) – 10 years of NDIS influencing to ensure early intervention and needs-based supports for pwMND Our Vision: A world without MND Our Mission: To promote, influence and advance MND care and research to improve the lives of all […] READ MORE