The inaugural webinar in the newly developed MND New Zealand Community Forum series went successfully, with an impressive turnout and high engagement during the Q&A session. The webinar also saw the announcement of the publication of the NZ-based Best Practice Recommendations for the Care of People with MND. “As a early stage slow progressing MND … Read more
A new set of clinical guidelines for the management and care of individuals with MND has been published today, 8 November 2022. Developed over a number of years by a working group of New Zealand MND clinicians and funded by MND New Zealand, this first-ever New Zealand based best practice recommendations (BPRs) represent what specialists … Read more
Join us for this inaugural webinar in the newly developed MND New Zealand Community Forum where leading researchers and neurological practitioners will provide an update on key areas of motor neurone disease research happening on both sides of the Tasman. Register for the MND Community Forum Webinar – 8 November 2022 Registration to this webinar … Read more
MND New Zealand welcomes the announcement of Professor Chris Shaw in his appointment to the Hugh Green Chair in Translational Neuroscience in the Centre for Brain Research at the University of Auckland. The Hugh Green Foundation has generously endowed this Chair in Translational Neuroscience and the Hugh Green Biobank in perpetuity in the Centre for … Read more
In this issue:
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By October of this year, a small group of New Zealanders living with Motor Neuron Disease will begin their journey as members of the first-ever international phase 3 MND clinical trial to be offered in New Zealand, across multiple locations. The Lighthouse II trial looks at whether human endogenous retroviruses (HERVs) play a role in … Read more
MND New Zealand is delighted to announce the appointment of Scott Arrol as the new Chief Executive. Scott will be joining the team on the 14th of March 2022. Scott has significant experience in the health and not-for-profit sectors, most recently as the Chief Executive for Dementia New Zealand. Prior to this, Scott was the … Read more
Following the recent resignation of our Chair Greg Horton, we are delighted to announce the appointment of Natalie Thain as interim Chair to our AGM on 30th October. Natalie brings considerable governance experience at board level in a range of organisations, including large private sector organisations; listed companies; local, central, and regional government agencies; non-profits; … Read more
The end of the tax year is almost here! As we are a registered charity (The Motor Neurone Disease Association of New Zealand Incorporated – Registration Number: CC35320), if you donated to MND New Zealand during the 2020 tax year (ending on 31st March 2021), you could be eligible for a tax refund. We estimate … Read more
A big thank you to our Foundation Corporate Sponsor Fulton Hogan as we celebrate the one-year anniversary of our partnership and The Fulton Hogan MND New Zealand Support Fund. It takes a team to live with the impacts of MND and we are so proud to have Fulton Hogan as part of the team making … Read more
It takes a team to live with the impacts of MND. Every member of the community plays a valuable part; friends and whānau, health professionals and researchers, volunteers and supporters. As our Foundation Corporate Sponsor, we’re proud to have Fulton Hogan as part of the team making a difference by supporting our vision: Together, we provide … Read more
The David Oliver Beacon Award is an annual award that honours, acknowledges and celebrates those who have made a significant contribution to the MND community. The theme for 2019 is: Acknowledging an individual or team making a difference on the journey of people or families living with motor neurone disease. We’re delighted to announce that this … Read more