MND Latest News

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Proposed changes to the prescribing of Riluzole – MoH Consultation open until 9th August

Following our 3rd April article, 'Prescribing of Rilutek (Riluzole) - What you need to know', we would like to update you on current progress. Recently it has come to our...
15/06/17 Emirates Team New Zealand training on the great sound in the lead up to the America's Cup Finals

Copyright: Richard Hodder / Emirates Team New Zealand

MND New Zealand announced as Official Charity of Emirates Team New Zealand

MND New Zealand (the Motor Neurone Disease Association of New Zealand) are to partner with Emirates Team New Zealand as the official charity of the Team for the 36th America’s...
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Fulton Hogan announced as inaugural Foundation Corporate Sponsor

The Motor Neurone Disease Association of New Zealand (MND NZ) and Fulton Hogan have announced a three-year partnership to enhance the quality of life for people living with motor neurone...
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Presentation by Professor Chris Shaw & Guests – Auckland, 21st June

As part of MND Awareness Week 2019 (17-23 June) and to celebrate Global MND Awareness Day on 21st June, MND New Zealand invite you to join us for "An update...
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Q&A with Paul Manning from Helius Theraputics

Paul Manning knows first-hand the effects of opiate-based pain killers. Having experienced chronic pain for over 15 years, he relied on his doctor and pharmacist to help him with pain management. Paul...
Nominations

Nominate a health care professional or team!

The David Oliver Beacon Award is open for 2019 submissions. This year’s theme is: Acknowledging an individual or team making a difference on the journey of people or families living...
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End of Life Choice Bill Update

Having the right to choose assisted dying has become a global debate. Lobbying, submissions and protests have urged governments to look at current laws and work towards more compassionate policy...
Elise Doyer Suppoert Team Member

New Support Team Member Elise Doyer

MND New Zealand is proud to announce our newest member to our Support Team, Elise Doyer. Pronounced ‘Elisa,’ Elise comes with a very strong and diverse background and is a...
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New MND New Zealand online forum to replace KIWIPALS

We are excited to launch our new MND New Zealand Forum. The forum is an online community for people living with or affected by MND to share experiences and support...
Family Funded Care

Family Funded Care Update

A recent report surveying over 900 affected families and care organisations about the carer laws has been released with an overwhelming agreement for better pay, removal of the paid 40-hour-...
Claire Reilly

Prescribing of Rilutek (Riluzole) – what you need to know.

MND Community & Research Advisor Dr. Claire Reilly explains best practice when being prescribed Rilutek (Riluzole). Riluzole is the only drug funded for the treatment of MND in New Zealand....
Toni Foster

Support Team Leader Toni Foster shares on the diverse role of MND Support Team.

Meeting the needs of people living with MND and their families and carers is a vital part of MND New Zealand’s mission. Our team of 7 MND support team members...