News Articles – Motor Neurone Disease New Zealand

Nov 18

National Council update

At our recent 2019 Annual General Meeting, we announced some changes to the National Council for the coming year. Beth Watson and Tony Treloar both retired from council at the...

Nov 15

Corporates get icy for MND

This year, MND New Zealand and Angel Street held the first ever Corporate Ice Bucket Challenge; a new initiative encouraging kiwi businesses to raise awareness of motor neurone disease. As...

Oct 16

MND Community Survey Findings announced

We’re proud to share the findings of our MND Community Survey, and appreciate the time and effort of those who participated. We know you’ll be keen to see the results,...

Oct 09

The Grocery Charity Ball 2019

MND New Zealand was chosen as the charity beneficiary of the Grocery Charity Ball 2019. The premier event on the grocery industry social calendar has directed over $3million to charitable...

Oct 03

Outcome of consultation on the changes to the prescribing restrictions of riluzole

We have been closely following the Medsafe consultation on the changes to the prescribing restrictions of riluzole (trade name ‘Rilutek’). In April we raised concerns that some of our clients had...

Sep 16

Participants needed to help with Blood Brain Barrier Study

MND in New Zealand

Research is a vital key that will one day help to unlock a cure for MND. The Centre for Brain Research at Auckland University is currently looking for volunteers to...

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Sep 06

Emirates Team New Zealand launches their first boat and an opportunity for you to get involved!

Bright and early this morning, our major supporter, Emirates Team New Zealand revealed their first AC75 monohull boat to the world at Auckland’s Viaduct Harbour. The boat was christened 'Te...

Sep 03

Want to make a difference on MND New Zealand’s National Council?

MND in New Zealand

MND New Zealand supports people living with Motor Neurone Disease, their carers, families and whanau, and the Health Professionals who work with them throughout New Zealand. We’re currently on the...

Aug 29

Just launched- The Fulton Hogan Support Fund

Living with MND

Living with MND is incredibly challenging, and providing practical support to people living with MND is very important to us. With this in mind - we’re delighted to let you...

Aug 23

Living with MND – Samarra’s story

Living with MND | MND in New Zealand

West Coast woman Samarra Wright is one of three people in her family currently living with MND .The SOD1 Gene responsible for familial MND is prevalent in Samarra’s family -...

Jul 31

MND New Zealand Strategic Plan 2019-2022

MND New Zealand are proud to share our Strategic Plan for the next 3 years. The 2019-2022 plan (July-June) is the result of the collaborative work undertaken on behalf of...

Jul 17

Proposed changes to the prescribing of Riluzole – MoH Consultation open until 9th August

Following our 3rd April article, 'Prescribing of Rilutek (Riluzole) - What you need to know', we would like to update you on current progress. Recently it has come to our...

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