As part of Awareness Week 2019, MND New Zealand launch their 3 year research strategy focusing on cure, care, communication and collaboration.
As part of Awareness Week 2019, MND New Zealand launch their 3 year research strategy focusing on cure, care, communication and collaboration. MND New Zealand’s Research Strategy aims to develop a globally connected, comprehensive, national MND research programme.
Based on data from international studies, it is estimated that there are over 300 people living with motor neurone disease in New Zealand at any one time, and more than 100 people will die of the disease each year. Median survival time from onset to death is 3–4 years for ALS. The exact prevalence of MND in New Zealand is not known, however recently published MND mortality data would suggest that the prevalence may be higher than in other countries.
The Motor Neurone Disease Association of New Zealand (MND New Zealand) is a small not-for-profit organisation whose main purpose is to help support people with MND and their carers. There is no cure for MND, but until there is, the MND New Zealand vision is: “Together we provide the best care and support for those living with MND.” The aim of the MND New Zealand Research Strategy is to develop a globally connected, comprehensive, national MND research programme that ensures all people with MND living in New Zealand receive the best evidence-based care and support available, whilst remaining part of the international effort to identify the causes of, and ultimately a cure for, MND.
To read the full MND New Zealand Research Strategy 2019-2022 please click here.