Motor Neurone Disease Awareness Month – June
Living with motor neurone disease (MND) presents immense challenges every day. Every week at least two people are diagnosed with this life-shortening disease, drastically changing the lives of not only those diagnosed, but also their families/whānau, and the wider community.
It takes a team to live with the impacts of MND. Every member of the community plays a valuable part: family and whānau, friends, carers, researchers, employers, health professionals, MND New Zealand, and more. They all provide much-needed support to enable those living with MND to have the best quality of life.
My name is Kylie. I am a daughter, mum and grandmother and I have been living with MND for 9 years. My father and his father also had MND. It’s been a difficult road, but I am learning that its okay to ask for help.
I’m grateful to be surrounded by an amazing team which includes whānau, friends, and specialists who are always there to give me the emotional, practical and medical support I need every day to live with this condition.
After carefully considering the risks of COVID-19 on the health, safety and wellbeing of our volunteers and generous donors, we have made the decision to not to hold public street appeal collections during Motor Neurone Disease Awareness month. However, you can still support our Virtual Street Appeal. Simply click on your district’s fundraising page and donate what you can. You will also be given the option to leave a message of support on the page for others in your district to see.
Become a Virtual Volunteer Collector by sharing a link to your region’s page and Virtual Volunteer Collector badge with your friends, family, colleagues and local community on social media (found in resource hub below). Thank you for your generosity, it means a lot!
Have a Cuppa Tea for MND in the comfort of your own home on the 21st June.
Show support for MND New Zealand’s vital services by donating the price of a good cuppa. Or start a virtual Cuppa Tea for MND and create a fundraising page to share with friends and family, nominating them to have a cuppa and donate. Click here to Join Cuppa Tea for MND, donate or fundraise.
Our Resource hub below contains selfie signs available to download, print and fill in. Take a photo with your cuppa, share it on social media and email it to firstname.lastname@example.org. Share your support of those living with MND, honour loved ones lost to the disease, and raise awareness of those working hard in the MND health, care, and research teams.
The more people who know about MND, the more funds and awareness you can raise.
Add “Motor Neurone Disease Awareness Month” to your Facebook profile photo by clicking here.
Download image resources to spread the word to friends, family, neighbours and colleagues.