The NICE Guidelines, produced in the UK, are the authoritative guide for managing Motor Neurone Disease. The MND Association of England, Wales, and Northern Ireland and MND Australia have also developed websites specifically for professionals involved in the care of people with MND. We hope the links below are useful.
The National Institute for Health and Care Excellence (NICE) Guidelines are the authoritative best-practice guidelines for assessing and managing Motor Neurone Disease, produced in the UK.
These aim to improve care from the time of diagnosis, and cover information and support, organisation of care, managing symptoms and preparing for end of life care. These guidelines are reviewed regularly.
A new diagnostic tool highlighting motor neurone disease ‘red flags’ has been developed for GPs in New Zealand.
The diagnostic tool 'Painless, progressive weakness – Could it be MND?' (PDF) asks GPs to refer relevant patients to a neurologist, thereby reducing inaccurate referrals and speeding up time to an accurate diagnosis.
Adapted with permission from MND Australia and the MND Association of England, Wales and Northern Ireland, the tool outlines MND signs and symptoms including bulbar and limb features, respiratory and cognitive features, as well as supporting factors that point towards a diagnosis of MND.
A useful online resource for GPs and primary health care teams, with the MND module recently updated (2017). You need to register to view (only an email address and password are required).
We have recently launched a new MND New Zealand forum. The forum is an online community for people living with or affected by MND to share experiences and support one another.
The forum is public so anyone can go to the website and read the posts. We are emphasising that this ‘'is an 'open forum' so please only include information which can be made public. The Forum is not a substitute for professional advice. You should consult your doctor, or other relevant professional, before making any decisions that could affect you or others''.
We hope that our MND Community will find the information shared here useful.
MND Care Australia
MND Australia has developed a website specifically for professionals involved in the care of people with MND: MND Care Australia. This is an evidence-based and best practice website for health, disability, aged and community care professionals.
In 2011 MND Australia also developed the MND Aware online training sessions, which provide health and community care professionals with a basic understanding of MND and the impact of MND on an individual’s life.
The MND Association of England, Wales, and Northern Ireland dedicates a section of their website to health and social care professionals who provide care and support for people with MND.
'Messages for Professionals from People with MND' is a worthwhile read.