Support For Carers & Family

Taking on the role of caregiver for a loved one with Motor Neurone Disease was likely profoundly unexpected and a role that you may not feel adequately prepared for. At each stage of caring, you will need to know where to find information and other kinds of help to support your role. Please contact your local MND Support Team Member whenever you are in need of advice and support.


You may not recognise yourself as a carer. Perhaps you say, "I'm just being a husband, a wife, a mum, a dad, a son, a daughter, a friend or a good neighbour".

But without the right support, the personal cost of caring can be high, with many carers experiencing poor health, poverty and disadvantage. It is important to identify yourself as a carer and find out about entitlements such as Individualised Funding (see in 'Finding Support', below), rather than simply taking each day as it comes.

Good outcomes for carers occur when:

  • the carer is able to cope with their caring role,
  • the carer gets a regular break from caring,
  • the carer is informed and knowledgeable about their caring role and the needs of the person they care for, and
  • the carer feels valued, supported and listened to.

We highly recommend you explore the resources below, and also click here to download the booklet 'A Guide For Carers – He Aratohu mā ngā Kaitiaki', or call Work and Income on 0800 559 009 for a hardcopy. This is a fantastic resource for New Zealand carers.