This page has been developed for updates and resources related to the COVID-19 pandemic.
Currently New Zealand is operating at COVID-19 Alert Level One. For more information on Alert Levels, visit the New Zealand Government COVID-19 website here
We advise visiting the following Ministry of Health website for the latest updates and advice specifically for disabled people and their family and whanau.
If you are living with or caring for someone with MND, please discuss any specific concerns you have with your health and social care team. They will be able to give you advice and information which takes into account your specific circumstances.
COVID-19 is a new illness that can affect your lungs and airways. It’s caused by a type of coronavirus.
There are simple steps you can take to protect you and your family/whānau:
The symptoms of COVID-19 are:
If you or anyone in your household have these symptoms, please telephone Healthline (for free) on 0800 358 5453 or your doctor immediately.
If you are struggling to breathe please get medical help urgently by calling 111.
More information, including regular updates and advice for people with disabilities and their carers is available on the Ministry of Health website.
People living with MND often have a harder time with swallowing, breathing and coughing due to muscle weakness and are therefore at risk of developing serious complications if they contract COVID-19, regardless of age. Every precaution should therefore be taken to prevent you and the people in your household from becoming infected with COVID-19.
The Ministry of Health has put together a website specifically for disabled people and their families. Click here to access it.
It is important that as a carer you have a plan so that someone else is able to provide care for your loved one if you fall ill, or need to self-isolate.
Think about who could step in should you need help. It is essential that this person is also taking the same precautions to avoid exposure to COVID-19 as you yourself are taking.
Write down detailed instructions of how you do things to provide this care so that the person with MND feels confident that their care will continue in the same way and others feel confident to perform these cares.
List the names and doses of medications.
List the names and contact details for healthcare providers – GP, pharmacy, hospice nurse, NIV contact person, SLT, OT, support team member, NASC coordinator, Talklink etc.
Keep your environment clean using disinfectants. Ask all those entering your house to wash their hands using sanitiser before they enter.
Use technology to keep in contact with family, friends and your community. Remember that your MND support team member is available for support through phone calls, texts, email, video calls etc.
The Ministry of Health website also contains information for community care providers including the appropriate use of PPE, available here
On Saturday 21st March, the New Zealand Government introduced a 4 tier Alert Level system, aimed at reducing the spread of COVID-19, quickly moving through Alert Levels to a full lockdown.
After successfully eliminating COVID-19 New Zealand is now operating at Alert Level One.
General information about alert levels and the New Zealand Government's response can be found here : https://covid19.govt.nz/
Getting disability support during COVID-19
For information about getting disability support during COVID-19 see Getting disability support.
Temporary changes introduced by the Ministry of Social Development (MSD)
MSD has made some temporary changes to documents required as part of the COVID-19 response. An overview of the changes is available in our blog article here
During Alert Levels Two, Three and Four, MND New Zealand team members worked from home.
Under Alert Level One, all MND New Zealand services have resumed operation. Support Team members are conducting home visits for those who are comfortable accepting visitors.
National Office has reopened and all team based there are working from the office.
MND New Zealand is a registered charity, reliant on donations from the public.
Donate here to help enable MND New Zealand to continue our vital work, supporting people living with this devastating disease today, and those who are sadly yet to be diagnosed in the future.
Student Volunteer Army is offering contactless delivery of groceries purchased at New World stores in many communities throughout New Zealand, using its network of vetted volunteers.
Place an order using your debit or credit card by visiting shop.sva.org.nz or by calling 0800 005 902.
A volunteer will collect your items and then deliver them to your door. Your card will be charged with the exact amount spent at the supermarket following delivery, plus a $6 delivery fee.
Deliverat.co.nz is a regularly updated website which lists food and beverage providers offering home delivery.