Summary of study provided by lead investigator Paige Thomas (PhD); Rose Centre for Stroke Recovery and Research, Department of Communication Disorders, University of Canterbury, Christchurch For individuals with MND swallowing is often impacted, leading to difficulties with eating and drinking. We investigated a new type of swallowing therapy that uses […] READ MORE
Having entered a nationwide Alert Level 4 COVID-19 lock-down period, we want to let you know what we are doing in response to current situation. Because the Registry is based in the Auckland DHB, we have put plans in place to enable Registry staff to continue to work from home […] READ MORE
To all participants and potential participants in our University of Auckland/ADHB MND genetics screening and MRI scanning studies, Due to the COVID-19 pandemic, to ensure that participating in our research remains safe and you don’t need to go out to have scans done or to have blood samples taken, we […] READ MORE
A huge thank you to all of the guest speakers and for everyone who attended. Please enjoy the video of the afternoon. If you have any questions about the presentations please contact us at any time. Please find the presentation slides from MND Registry Curator, Kerry Walker here, and […] READ MORE
As part of Awareness Week 2019, MND New Zealand launch their 3 year research strategy focusing on cure, care, communication and collaboration. MND New Zealand’s Research Strategy aims to develop a globally connected, comprehensive, national MND research programme. Introduction Based on data from international studies, it is estimated that there […] READ MORE
The first paper and findings – Occupation and Motor Neurone Disease: a New Zealand case-control study – has been published in Occupational & Environmental Medicine. Please click on the link below to access the paper, https://oem.bmj.com/content/76/5/309.full?ijkey=zVCJaVI8H68DFRy&keytype=ref READ MORE
MND New Zealand proudly helps fund vital research at the Centre for Brain Research at the University of Auckland and supports the latest genetics study. Dr. Emma Scotter (Centre for Brain Research, University of Auckland), Dr. Richard Roxburgh (Neurogenetics Clinic, Auckland City Hospital), and collaborators are now recruiting for a […] READ MORE
Promising research results announced this week from an Australian clinical trial using a compound called copper-ATSM show that the drug is safe and effective in the effort to defeat Motor Neurone Disease. It has taken the Melbourne-based research team 15 years of working with the compound to get to this […] READ MORE
For further details on the presentations and presenters from this year’s symposium, please go to https://www.mndassociation.org/symposium/. You may also be interested in the cleverly designed ‘Periodic Table of MND Research’ summary of the symposium here https://www.mndassociation.org/symposium/symposium-live/ A huge thank you to the MND Association of England, Wales and Northern Ireland for sharing […] READ MORE