To all participants and potential participants in our University of Auckland/ADHB MND genetics screening and MRI scanning studies, we hope you are well and thank you for your patience during the COVID-19 pandemic.  Now that we are at Level One, we have resumed study enrolment and sample collection and imaging […] READ MORE

Posted on: 18th June Posted by: MND NZ

A ground-breaking MND clinical drug trial is about to launch in Scotland. The platform, MND-SMART, is a UK-wide trial which aims to find treatments that can slow, stop or reverse the progression of MND. While clinical trials usually focus on a single drug, MND-SMART will allow more than one treatment […] READ MORE

Posted on: 20th January Posted by: MND NZ

On Monday 9th December, in conjunction with the MND Research Network, we proudly hosted the Inaugural MND New Zealand Research Conference at the Cordis Hotel in Auckland. It was a momentous occasion, gathering 16 speakers, both national and international experts, to discuss the latest updates in MND Research. The Morning’s […] READ MORE

Posted on: 19th December Posted by: MND NZ
Fight MND Symposium 2018

The first Australasian MND Symposium, held in March 2018, was an in-depth, technical, fascinating glimpse into current MND research from all over the world. We learned there are more therapeutic approaches being developed for MND than ever before, increasing the likelihood that new therapies will become available that provide a […] READ MORE

Posted on: 27th September Posted by: MND NZ
MND Community Survey 2018

Today we invite you to complete our MND Community Survey. Our service will be shaped by your input today. This is our biggest ever survey, and your response is crucial to the future strategy and direction of MND New Zealand. We would really appreciate your input.   Please complete only one of the following 5 […] READ MORE

Posted on: 20th August Posted by: MND NZ

For an easier to read format, please click here for a PDF of the text below.   Palliative Approach to MND There is increasing evidence that palliative care, integrated in a multidisciplinary approach to care, leads to improved symptoms and quality of life in pwMND and their families. These outcomes can […] READ MORE

Posted on: 25th July Posted by: MND NZ

For an easier to read format, please click here for a PDF of the text below. Multidisciplinary Clinics This summary is based information presented by Paul Talman, clinical session 6B, and discussions with staff at Calvary Healthcare Bethlehem (Dr Susan Mathers, Dr Paul Talman and Occupational Therapist Sarah Solomon). It also summarises […] READ MORE

Posted on: Posted by: MND NZ

For an easier to read format, please click here for a PDF of the text below. 1. Global MND Clinical Trials Overall, there are more new therapeutic approaches to MND than ever before, increasing the likeihood that new therapies will soon be available that provide a meaningful impact on the lives […] READ MORE

Posted on: Posted by: MND NZ

For an easier to read format, please click here for a PDF of the text below. 1. Drug Development Overview ALS is not one disease. Will not be solved by one treatment. Genetics discoveries point to the pathways for disease. 18 clinical trials have failed in the last decade. Failure […] READ MORE

Posted on: Posted by: MND NZ
A proposed staging system for MND

For an easier to read format, please click here for a PDF of the text below. “It’s a very exciting time to be involved in MND research. There’s a lot of hope and positivity” – Prof Matthew Kiernan, Bushell Chair of Neurology, Sydney Medical School. “I’m really optimistic for the […] READ MORE

Posted on: Posted by: MND NZ

1. Clinical Management Golden Rules Equipment Communication Comfort Care 2. Respiratory/NIV Ventilatory assistance overnight Ventilatory assistance during the day NIV: When to start, when to stop 3. Augmentive & Assistive Communication Eye gaze Voice banking Neuronode For an easier to read format, please click here for a PDF of the […] READ MORE

Posted on: 24th May Posted by: MND NZ
Australasian MND Symposium 2018 - day 3

UPDATES FROM AUSTRALIA AND THE WORLD 8:45am Carol Birks (CEO, MND Australia) – 10 years of NDIS influencing to ensure early intervention and needs-based supports for pwMND Our Vision: A world without MND Our Mission: To promote, influence and advance MND care and research to improve the lives of all […] READ MORE

Posted on: 24th March Posted by: MND NZ